Have him look at the web sites devoted to Low Dose Naltrexone and Crohn's and read up on it while he is waiting for follow up. He probably won't get it from his GI doc. (They don't "believe" in it.) But any type of doc can write a script. Far as I'm concerned, it put me into remission. I am now medication and symptom free.
I should mention that before LDN I had my appendix out (during a flair) and then my small intestine developed small ulcers through-out which only budesomide (steroid) would handle. I asked for LDN from my rheummy for cronic, non-moving pain. After about 3 months, I realized I didn't need the steroid for my small intestine. If your hubby is using opiates as pain releavers, he will have to finish with those first before using LDN.
Tell him to read about Low Dose Naltrexone then find a doc to perscribe it. I did and I have been symptom and medication free for several years. In the meantime, roughage is mostly the problem. Start small and see what is tolerated and then add to it. Crohn's is too varied to say more.
- Low-dose naltrexone for the induction of remission in patients with mild to moderate Crohn’s disease: protocol for the randomised, double-blinded, placebo-controlled, multicentre LDN Crohn study https://pmc.ncbi.nlm.nih.gov/articles/PMC8996009/
Have him look at the web sites devoted to Low Dose Naltrexone and Crohn's and read up on it while he is waiting for follow up. He probably won't get it from his GI doc. (They don't "believe" in it.) But any type of doc can write a script. Far as I'm concerned, it put me into remission. I am now medication and symptom free.
Thanks to the LDN (I feel this is the case 'cause it is the only thing different)I am Unmedicated and unsymptomatic. I have had a normal coloscopy in 2021 and in 2024. My stools are normal and regular. Crohn's seems to be a thing of the past. I still take the LDN (2mg) with stopping for surgeries. I feel that it is good for my immune system.
IBD for 39 years. UC from 1987-1996, jpouch - large colon removed in 1996, Crohns from 2002-present. Horribly sick the first 9 years, since jpouch surgery I have had no hospital stays, and only mild or remission with meds. I am currently transitioning to Tremfya while still on my oral meds - azathioprine, & a cipro/flagyl rotation, I also take loperamide, metamucil powder, wafers or capsules to thicken up bm's.
Finally, some one else who started with the UC and ended up with Crohn's. All my drs have a perplexed look on their face when they read that. I know they want to ask questions, but don't. Anyway, take a look at all the write-ups for LDN. It might help you.
I have Crohn’s Disease along with really bad case of diverticulosis. Right now I’m off of biologics due to having too much illness—Influenza A, bibasilar pneumonia, and pneumonia in the right base— within about 18 months. Entyvio worked well for about 5 years. Then I went on Stelara which almost did me in. My main complaints now are pain in lower left quadrant almost everyday, chronic constipation, and chronic fatigue. My GI doctor put me on Trulance, but its action is unpredictable. I really don’t know where to turn to next. My GI doctor doesn’t seem to be impressed at all, but I know I felt great when I was on Entyvio. It’s very frustrating. I would love to travel again.
I've had Chrone's for about 30 yrs. I usually have 2 flare-ups a year. This time it's been 2 months. I had an Upper GI with barium, then 2 days later, I took the SIBO Test. I've been Very sick ever since the test. Extreme pain, bloated, etc...I am praying for some relief soon. Going to the Mayo Clinic this time.
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I should mention that before LDN I had my appendix out (during a flair) and then my small intestine developed small ulcers through-out which only budesomide (steroid) would handle. I asked for LDN from my rheummy for cronic, non-moving pain. After about 3 months, I realized I didn't need the steroid for my small intestine. If your hubby is using opiates as pain releavers, he will have to finish with those first before using LDN.
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1 Reaction@suetex - I'm posting a couple of published studies on low-dose naltrexone for Crohn's, which may be what you're referencing:
- Low-dose naltrexone therapy improves active Crohn's disease https://pmc.ncbi.nlm.nih.gov/articles/PMC8996009/
- Low-dose naltrexone for the induction of remission in patients with mild to moderate Crohn’s disease: protocol for the randomised, double-blinded, placebo-controlled, multicentre LDN Crohn study https://pmc.ncbi.nlm.nih.gov/articles/PMC8996009/
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1 ReactionAwesome! I will. Thank you. Did you have surgery where a part of your intestines was removed?
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2 ReactionsIt turn out to be an appendectomy so easy to let go of. I think having part of your intestine out is another category all together.
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2 Reactions@genabarrick, wondering if you are still having bad pains from Crohn's flareups?
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1 ReactionThanks to the LDN (I feel this is the case 'cause it is the only thing different)I am Unmedicated and unsymptomatic. I have had a normal coloscopy in 2021 and in 2024. My stools are normal and regular. Crohn's seems to be a thing of the past. I still take the LDN (2mg) with stopping for surgeries. I feel that it is good for my immune system.
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Like -
Helpful -
Hug
2 ReactionsIBD for 39 years. UC from 1987-1996, jpouch - large colon removed in 1996, Crohns from 2002-present. Horribly sick the first 9 years, since jpouch surgery I have had no hospital stays, and only mild or remission with meds. I am currently transitioning to Tremfya while still on my oral meds - azathioprine, & a cipro/flagyl rotation, I also take loperamide, metamucil powder, wafers or capsules to thicken up bm's.
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Like -
Helpful -
Hug
2 ReactionsFinally, some one else who started with the UC and ended up with Crohn's. All my drs have a perplexed look on their face when they read that. I know they want to ask questions, but don't. Anyway, take a look at all the write-ups for LDN. It might help you.
-
Like -
Helpful -
Hug
2 ReactionsI have Crohn’s Disease along with really bad case of diverticulosis. Right now I’m off of biologics due to having too much illness—Influenza A, bibasilar pneumonia, and pneumonia in the right base— within about 18 months. Entyvio worked well for about 5 years. Then I went on Stelara which almost did me in. My main complaints now are pain in lower left quadrant almost everyday, chronic constipation, and chronic fatigue. My GI doctor put me on Trulance, but its action is unpredictable. I really don’t know where to turn to next. My GI doctor doesn’t seem to be impressed at all, but I know I felt great when I was on Entyvio. It’s very frustrating. I would love to travel again.
-
Like -
Helpful -
Hug
3 ReactionsI've had Chrone's for about 30 yrs. I usually have 2 flare-ups a year. This time it's been 2 months. I had an Upper GI with barium, then 2 days later, I took the SIBO Test. I've been Very sick ever since the test. Extreme pain, bloated, etc...I am praying for some relief soon. Going to the Mayo Clinic this time.
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Like -
Helpful -
Hug
2 Reactions