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Bladder Cancer Group: Introduce yourself and connect with others

Posted by Colleen Young, Connect Director @colleenyoung, May 17, 2024

Welcome to the Bladder Cancer support group on Mayo Clinic Connect.

This is a welcoming, safe place where you can meet people living with bladder cancer or caring for someone with bladder cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

Feel free to browse the topics, use the group search to find answers to your questions or start a new discussion.

Pull up a chair. Let’s start with introductions.

What type of bladder cancer were you diagnosed with? What treatments have you had? How are you doing?

Interested in more discussions like this? Go to the Bladder Cancer Support Group.

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jaxfl | @jaxfl | 2 days ago

There are many topics regarding this on BCAN/Inspire.

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Sue, Volunteer Mentor | @sepdvm | 16 hours ago
In reply to @annie72 "I was just diagnosed with a 3cm bladder tumor it was cancerous it was resected and..." + (show)
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I was just diagnosed with a 3cm bladder tumor it was cancerous it was resected and I went home with a catheter, the bladder was injected with a round of chemo my next appointment is October 23 at which time I hope the catheter comes out and I should find out what stage it was and what chances of reoccurrence there is. I’m thinking I should be getting a couple more chemo injections but won’t know for sure anyone else have information on this ?

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Hello @annie72 , Welcome to Connect. Did you get more information from your appointment today? The histopath from the tumor will be very important in directing your further treatment. My husband had an aggressive muscle invasive tumor in a diverticulum/pouch off the bladder that was resected and bladder infused with Mitomycin. After chemo, BCG, immunotherapy, and several TURBTS for recurrences, he elected to have a radical cystectomy with neobladder. This began in 2019 and he is now clear of cancer but it has been quite a battle. Go into your appointments armed with questions about length of treatment, side effects, and possible complications. It is hard to know what to ask, but every question you have is important enough for your medical team to give you an answer. Keep us informed.

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Sue, Volunteer Mentor | @sepdvm | 15 hours ago

Hello @ksmcandle and welcome to Connect. As you can see from my reply above to annie72, my experience has been with my husband's UCC and he did not have the Gem/Doce treatment. I have no doubt that if you look back through these posts you will find more ladies who have had this treatment, though this cancer is more frequent in men. There have been more drugs approved and other recent changes even since 2019 and saving the bladder is becoming more successful. Keep watching this list and researching so that you can make the best decisions with your health care team.

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