Trigeminal, but not Trigeminal Neuralgia. What is it? HELP
I came down with a virus mid December that would not go away. 5 rounds of antibiotics later and a CT-scan, I got into a ENT. He told me that my sinuses looked great and I had no sinus problems, but that it was my trigeminal nerve. I had sinus pressure behind the eyes, pain, mucus, and I felt like my eyeballs were being pushed out of my head. ENT referred me back to my PCP and said for her to put me on Carbamazepine. The carbamazepine worked on 50% of my issue. Then a MRI and an appointment with my neurologist. She said it was just migraines and nothing to do with my trigeminal. She put me on nortriptyline and said to start weening off the carbamazepine after 30 days. While I was on both, all was great. I felt like I had my life back. A week after I hade weened off of the carbamazepine all the sinus symptoms came back. So I called and she put me back on the carbamazepine. It has been a month since I have been back taking both. I started to feel better and then, AGAIN, I am having sinus pressure behind my eyes, pain, mucus, and bad headaches day and night. Every time it feels like the flu, but the flu goes away.
Has anyone been diagnosed with anything like this and told it is an overactive trigeminal nerve?
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@tiffiekitty Is what you have considered nerve pain? If so, Check out Scrambler Therapy on Mayo Clinic or Calmare Therapy at a wonderful clinic in Clifton, New Jersey….I just finished treatment there with amazing results.
@duchess926 I don’t know. I have balance issues/ sensitive to motion and so much pressure through my sinus and head. I am Gabapentin now. Regardless, I will look it up! Thank you!