Parkinson hallucinations

yes, my son has it. its very upsetting to him.
anyone has any suggestion.

I "see" things that aren't there. I "feel" things that aren't there. I've experienced these things well before being diagnosed with PD. I've, had Parkinson's symptoms for about 15 or 20 years.
I was blaming all of these symptoms on Ischemic Heart Disease and Hypothyroidism all these years.

Hello @monmk and welcome to the PD support group on Mayo Clinic Connect. I'm sure that these hallucinations must be unsettling for you. I see that @barryl and @estutweh have already shared their experiences with you.

There is some great information. Here is a link to an article about PD hallucinations on the Davis Phinney website: https://davisphinneyfoundation.org/blog/how-to-bring-light-to-the-darker-side-of-parkinsons-a-primer-on-hallucinations-and-delusions-and-how-to-manage-them/

Here is a quote from this article: "Parkinson’s disease psychosis is a non-motor symptom of Parkinson’s that causes people to experience hallucinations and/or delusions. Approximately 50% of all people living with Parkinson’s will experience some form of hallucinations or delusions, and the longer one lives with Parkinson’s, the greater the likelihood they’ll experience them."

This is described as a non-motor symptom of PD and is a result of having PD for an extended period of time. As this is your first post, please share, as you are comfortable doing so, a little about your history with PD. For example, how long ago were you diagnosed? Are hallucinations a new symptom for you?

@barryl I didn't have hallucinations until afer I started taking l-dopa. I don't know whether it was just a coincidence or if there's a causal relationship between l-dops and hallucinations. Some folks have scary hallucinationals. Fortunately, my hallucinations are a jolly experience. One category of hallucinations I call 'interior decorating." -- For example, I know perfectly well that all the fixtures in my bathroom are boringly white. However, sometimes I see designs similar to the glyphs of pre-Columbian cultures in such as Aztec and Mayan glyphs. My husband and I have been to some of the places and we are very much interested in these things so I think my brain is giving me a little treat, since we can't go there any more. I also know that none of our IKEA furniture (China closets and bookcases) are decorated to look lie brocade fabrics, but sometimes they do. I also sense the resence of imaginary people. Once these folks were dressed as those you might see on an MGM movie lot in the cafeteria - cowboys, knights, cowgirls, gymnasts. etc. I feel their presence in my peripheral vision, but with I turn to look at them directly, they disappear. immediately.I can generally recognize the difference between my hallucination and reality. However, once when I was in the hospital , (after my 3rd go-round of "Stump the Doctors," and finallly got my diagnosis of PD), I had taken a nap and I w oke up to see a man in black silk kpajamas sitting at the table at the foot of my bed. I first thought he was just another hallucination, but when I looked directly at him, he didn't disappear. I buzzed the nurse and when she got to my room, she recognzed the man. I was on the neurology ward and there were also folks with Alheimer'e and other diseases and he was functioning basically as a two-year-old child, and didn't recognze the difference between what belonged to him and what belonged to others. Unfortunately he took all my chocolates, which could, under other situations, would have had dire consequences for him; I do not take lightly to folks staking my chocolates!! I'm also fortunate in that I can generally tell when something is a hallucination and when it's not. I know that I hallucinations tend to occur more frequently if my l-dopa doses are very high. These that I had in thehhospital occurred when they were tryin to find the fight dosage for my l-dopa pump. Oral meds don't ave a one-to-one correlation with pump meds so there is some experimentation required to figiure out what the pump dose should be,and someo of my doses were realy high while in the hospital evalluating me for that. . I regard my hallucinations as my own private TV channel, but If your hallucinations are bothering you, I encourage to talk with your doctor about what you can do to make them less worrisome.

You definitely need to consult your doctor about adjusting your Carbidopa levodopa dosage. Higher dosages can cause hallucinations and even psychosis. If you still experience hallucinations without the Carbidopa levodopa, then your doctor could prescribe pimavanserin. It helps treat hallucinations in PD patients. Also, there are other PD medications besides Carbidopa levodopa. My hubby takes Ropinirole that helps with PD and restless legs. He is doing very well with it. Find what works for you.