My Experience on Evenity for Treating Osteoporosis

Posted by arlene7 @arlene7, Jul 7, 2020

Thought I would share for those considering or on Evenity for osteoporosis:
Afer much research and discussions with my GP and Cardiologist, I have decided to start my treatment with Evenity injections. As with all drugs, there are many side effects. My biggest concerns were stroke and heart attack. However, considering that I do no have any history for either, for me personally, the benefits outweigh the risks. As my GP said to me, "if everyone only thought about the side effects of the drugs, no one would be taking them".

I had my first injections (subcutaneously in the back of each arm) on June 30th. The nurse that administered the injections discussed the drug in depth, along with all the possibilities that may occur. She also mentioned that for all the patients that she has seen, none has had any side effects.

The injections are once a month for only one year, so I'm hoping that this works well for me and I can improve my bone density, especially in my spine, where I need it the most.

My endocronologist has also prescribed Hydrochlorthiazide for my idiopathic hypocalcemia. I have an appointment with an allergist this month to confirm whether I still have an allergy to sulfa drugs, since this drug contains sulfa. Apart from this I take D3 orally and try to obtain additional calcium through foods not supplements. Trying to walk 3-4 times a week and will begin with a few weight bearing exercises.

My journey began September, 2019 when I was diagnosed with severe osteoporosis. After waiting to see three doctors, receiving three denials from insurance company for Evenity, which took several months, I am hopefully on my way for a favorful outcome.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

Profile picture for sudeshna @sudeshna

Hi
It was very helpful to know about your reactions to Evenity (Romosozumab), thanks a lot.
I am 65 years old, and have osteoporosis. I have been on prednisolone for a long time off and on for a long time, to treat my autoimmune hepatitis. My heart parameters are all very sound and I am an active person. I am thinking of starting on it.
Would anyone have any comment on how much Evenity (Romosozumab) improved the bone density ? Also are the benefits significantly more than Teriparatide ?
Thank you again

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@sudeshna i just finished 12 months of evenity and i get my dexa in November. I will post the difference it made. It was hard getting through it. Lots of neuropathy pain, but i did it.

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Profile picture for mathompson @mathompson

@sudeshna i just finished 12 months of evenity and i get my dexa in November. I will post the difference it made. It was hard getting through it. Lots of neuropathy pain, but i did it.

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@mathompson
That is wonderful !
Will wait for your post after dexa. Meanwhile, hope your pain subsides.
Thanks again

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Profile picture for sudeshna @sudeshna

@mathompson
That is wonderful !
Will wait for your post after dexa. Meanwhile, hope your pain subsides.
Thanks again

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@sudeshna thank you. Thats my hope since im finished.

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