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Living with Parkinson's Disease - Meet others & come say hi
Parkinson's Disease | Last Active: Nov 7 3:33pm | Replies (743)Comment receiving replies
I've recently been diagnosed with PD following a SPECT and PET scan.
I have great difficulty walking more than a short distance because my left leg goes stiff and restricts my movement.
Thankfully, sleep disturbances and the inability to stop my brain from working overtime has subsided since the start of treatment with LDopa.
I struggle with believing this is happening to me and I'm scared of what may lie ahead.
I've had to stop doing things I love. Horse riding three times a week, hiking, biking, driving. I go to yoga class twice a week and have a wonderful instructor who is committed to helping me through this journey.
I feel like I have to start a whole new life and it's not one I had expected it planned for.
I'm generally pretty positive but there are times ...!
I'd be interested to learn what to expect in the months and hopefully years, ahead.
Replies to "I've recently been diagnosed with PD following a SPECT and PET scan. I have great difficulty..."
@esther589
Hello,
Welcome to mayoconnect. Your story just caused me to stop and reread. I cannot imagine what you are feeling . This is an awesome site. Again welcome. 🫂💕
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Hello @esther589, and welcome to the PD support group on Mayo Clinic Connect. I can understand how difficult it is to adjust to the idea of having a disorder like PD. It does feel like you have to start a whole new life.
I'm glad to hear that some of your symptoms have decreased with the use of the medication. Have you begun any physical therapy for PD yet? When you start PT, you will be amazed by how much better your mobility becomes. Exercise combined with medication is an essential component in treating PD.
It is hard to say what to expect in the months ahead. Some of us have minor disability and others more. As you read the posts from other members, you will see that there are no hard and fast rules or timelines.
What are the most difficult symptoms for you right now? Is speech or swallowing a problem for you?