Brinsupri (aka Brensocatib)

Posted by scoop @scoop, Aug 12 10:55am

FDA approved Brensocatib today. Hooray for us. Let’s hope we have access to it as soon as possible and it gives us some measure of relief. Thank you to all the scientists and doctors and patients!
https://www.multivu.com/insmed/9347351-en-fda-approves-brinsupri-brensocatib

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Profile picture for lindabreathless @lindabreathless

@lindabreathless
Irene, ironically I just received notice that Cigna is not offering a prescription plan any longer after Jan. 1st. I understand that they merged with another company and will be called HealthSpring, but they are not available in my area of Florida. There number is 855-401-9625 if you want to check your area for them. I’m working on finding a new plan.
Best of luck…

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@lindabreathless
I read an article stating that some major insurers are scaling back advantage and part D plans fro 2026 and some people might lose their coverage if it is dropped in certain areas of the country. These changes are a response to financial pressures, including changes to government funding and rising healthcare costs. This has led insurance carriers to scale back their offerings in less profitable regions. I wonder if they will also scale back coverage of specialty drugs as well as dropping locations. Probably will.

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Profile picture for irenea8 @irenea8

@lindabreathless
I read an article stating that some major insurers are scaling back advantage and part D plans fro 2026 and some people might lose their coverage if it is dropped in certain areas of the country. These changes are a response to financial pressures, including changes to government funding and rising healthcare costs. This has led insurance carriers to scale back their offerings in less profitable regions. I wonder if they will also scale back coverage of specialty drugs as well as dropping locations. Probably will.

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@irenea8 The possible problem is even when people and organizations make decisions that they think are good for them and us it 'ain't' necessarily so. That Drug out of pocket amount sounds great to us but it doesn't sound great to those providing the drug plans. As we know the Brinsupri is very costly and one of the factors that makes it hard for us and the drug companies providing the drug plans. What do you think, do you think that is part of it? The why of it as to why they are leaving areas or dropping coverages???
Barbara

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Interesting that this drug comes to market at such a high price. Sure, the company negotiated rebates with insurers but those rates are negligible meaning insurance will pay more for the drug than it's worth.

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Profile picture for irenea8 @irenea8

Is there anyone on the forum that lives in Iowa, received Brinsupri and is on Medicare? If so I would love to hear which plan D allowed you to get it through the exception process.

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@irenea8 I’m from Iowa, and have WellCare for my Part D coverage. No issues to get this drug accepted, Tier 5. I’m approved just this week, through 12/31/26. Then we get a new approval.

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Profile picture for irenea8 @irenea8

@lindabreathless
I read an article stating that some major insurers are scaling back advantage and part D plans fro 2026 and some people might lose their coverage if it is dropped in certain areas of the country. These changes are a response to financial pressures, including changes to government funding and rising healthcare costs. This has led insurance carriers to scale back their offerings in less profitable regions. I wonder if they will also scale back coverage of specialty drugs as well as dropping locations. Probably will.

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@irenea8 just found this post from you by accident ... I am on Humira which treats a couple of autoimmune conditions. It is a specialty drug. It has kept me in remission for 7+ years. Just got a notice from my Aetna Medicare Advantage plan that they are taking it off their formulary for 2026 and suggesting we work with our doctors to transition to the "biosimilar" which came on the market a couple years ago at a fraction of the price. Humira is phenomenally expensive and I think I read it's one of the most profitable drugs in the world. My GI doctor's office had warned me that a lot of insurances are no longer covering it in 2026. So that's a long way of saying that yes, specialty drugs are being cut back. At least this one (Humira).

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