Developed Rash on Hydroxyurea (HU)

Posted by pendlebear @pendlebear, May 17 2:14pm

I am 72 years old and have ET with JAK2 mutation. I am on HU 500 mg twice a day. I have recently developed a rash on my torso and shoulders. Had steroid injection yesterday and taking Benadryl daily. The itching has stopped but some new rashes are appearing. I guess I need to give it more time. My platelets are lowering and hematologist says if that continues she will switch me to one pill a day. Has anyone else gotten a rash?

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

pamdg | @pamdg | Jul 18 12:01pm

Yes I got a itchy rash on my ankles. Also ran a high fever. Doctor had me switch to Jakafi.

nohrt4me (Jean) | @nohrt4me | Jul 18 12:04pm

In reply to @eloise999 "What is Medicare Advance program? I never heard of it." + (show)

Sorry, my proofreading mistake: S/b Medicare Advantage. Coverage on those is all over the map. They offer at least what straight Medicare does, but they usually restrict you to a certain medical system and require referrals. They're often cutting vision, dental, and drug benefits each year to keep their profits up.

mw2023 | @mw2023 | Jul 18 6:06pm

In reply to @nohrt4me "Yes, financial cost of meds and health care generally is a concern for me, too. Glad..." + (show)

Chobani Greek yogurt zero sugar is lactose free. Make sure you see the lactose free label on the front. It is delicious and has great flavors.

hanya | @hanya | Oct 16 7:55am

In reply to @colleenyoung "@mamsgirl1998, I moved your question about rash with hydroxyurea to this related discussion so you can..." + (show)

@colleenyoung
Good Morning friends , I JUST READTHIS AND OTHER POSTS WHERE FRIENDS ARE SUFFERING FROM ITCHING ALL OVER BODY , some even have BAD RASHES , I LIVED WITH THAT FOR YEARS , I found RELIEF FROM TAKING A MEDICATION CALLED
HYDROXIZINE , ITS CHEAP PRESCRIPTION, my skin BURNED , NOT JUST ITCHED , for MANY YEARS
APPLYING COLD PACKS HELPS ,
NOW THAT MY PV HAS TRANSFORMED TO MF
ALL MY BLOOD NUMBERS ARE BELOW MINIMUM ON SCALE SO NO MORE ITCHING OR BURNING
I HOPE YOU ALL BRING THIS MEDICINE UP TO YOUR DOCTORS, GOOD LUCK AND GODS BLESSINGS

starbucks | @starbucks | Oct 17 10:42am

I had a burning sensation sort of red on thighs. Found out it was an allergic reaction to the blood pressure medicine when I was on hydroxurea. Stopped blood pressure medication and no burning anymore.

jbcl | @jbcl | Oct 17 1:57pm

In reply to @starbucks "I had a burning sensation sort of red on thighs. Found out it was an allergic..." + (show)

Glad you were able to determine the cause and are better. Good information to know....thank you!

View More View Less

Please sign in or register to post a reply.