Your legs and fibromyalgia

Yes, extremely painful. What have you done, for your pain? How about meds?

@lee9589
Since 2000, I have tried all that the doctors recommended up until they got to Lyrica and I did not want to go there. Everything I took didn’t help the pain and made me drowsy and not able to function normally during the day. The only thing that helps me is an opioid, which I take very sparingly when I want to go somewhere and enjoy myself and I only take half at a time. It took an act of Congress for me to get the opioids. They give me a very limited amount every month, which is plenty for me. That is one very sore point with me that the drug addicts can have opioids, but the people with a lot of pain are very restricted. I understand the problem, but still……..

@lee9589
Since 2000, I have tried all that the doctors recommended up until they got to Lyrica and I did not want to go there. Everything I took didn’t help the pain and made me drowsy and not able to function normally during the day. The only thing that helps me is an opioid, which I take very sparingly when I want to go somewhere and enjoy myself and I only take half at a time. It took an act of Congress for me to get the opioids. They give me a very limited amount every month, which is plenty for me. That is one very sore point with me that the drug addicts can have opioids, but the people with a lot of pain are very restricted. I understand the problem, but still……..

I am so glad to see others are having issues with your legs. When I get a pedicure I say, "Do not touch my legs!!!" No massages on my legs!!! Just below my knees are my most touchy.
Meme2day

I have very sensitive legs. Back of the knees painful. Walking for more than a block is painful. Recently my thighs starting hurting but so do my calf’s.I take Cymbalta and Nortriptylene and Tylenol but they don’t seem to be helping.Ive asked for help from my primary doctor but she doesn’t know anything about fibro. I live in SALEM, OR but can’t find help.I also have repeated pain in my right arm. It is very painful. I need help!

My leg pain/burning drove me to press doctors for pain management that led to my fibro diagnosis about 10 years ago. For my entire life, I was able to deal with pain everywhere, until leg/foot issues started. Pain and Burning at night prevents sleep. No sleep increases pain level. I tried every recommended fibro drug. Side effects of mind altering drugs exceeded any benefits for me. Recently, My leg burning/pain increased significantly following 30 rounds of radiation to groin lymph nodes and chemo nerve damage in toes. I am struggling with increased leg pain. Pain increases exponentially if I stand for more than 15 minutes, and sleeping through pain is an issue.

In the past, acupuncture helped leg pain management. I also had success with turmeric when swollen lymph nodes caused pain increase in 2020. I will avoid turmeric for at least 6 months post treatment, as some literature indicates that it may reduce chemotherapy efficacy.

Sadly, only opioids give me temporary minor relief for leg issues. I take a very small dose periodically to tamp down pain level when it gets extreme. There are studies on Federal NIH website supporting opioid effectiveness for fibromyalgia restless leg syndrome pain management. I use 5 mg codeine with Tylenol.

I plan to research other supplements and medications for pain management after my 6 month cancer treatment anniversary. Sanjay Gupta’s new book on pain talks about fairly new non opioid sodium channel blockers that reduce pain by blocking a pain signaling pathway in the peripheral nervous system b4 pain signal reaches brain. This year the FDA approved the 1st drug of this nature, Jounavx.