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Has anyone had dietary success with C-diff?

Posted by epm @epm, Nov 22, 2023

It is my understanding that the bad bacteria in C-diff are fed by sugar and that Vancomycin kills both good and bad bacteria.
Has anyone been told to replenish the good bacteria by taking probiotics? Or been told to follow a low-carbohydrate diet in order to starve the bad bacteria?
Searching for a more natural way to control recurrent C-diff.
Thanks for any suggestions,
Elaine

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mrsjohn101 | @mrsjohn101 | 5 hours ago
In reply to @emstorm "I had CDiff three times. The first time, it lasted for many many months and the..." + (show)
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I had CDiff three times. The first time, it lasted for many many months and the infectious disease doctor told me that other than taking vanco, there was nothing he could do for me. Another GI doctor suggested that instead of taking on again/off again vanco, to taper off. This did the trick and I did that with the next two episodes. I've not ha CDiff for 7 years now. It sounds like the fecal implant is something new. Sounds like it is the ticket to your horrible dilemma. Best wishes for you.

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@emstorm words from a world renowned infections disease doctor, Vancomycin does not cure c-diff. It only gives a false negative. That is why so many people get it back once they leave the hospital or SNF. It does slow it down from its full blown state. But it is taking the hair of the dog that bit you to cure you. It is only a temporary cure. Good luck.

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mrsjohn101 | @mrsjohn101 | 5 hours ago
In reply to @jfperrone "Have you or anyone used VOWST? Currently taking Vanco. again." + (show)
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Have you or anyone used VOWST?
Currently taking Vanco. again.

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@jfperrone I have heard great results about Vowst. Vancomycim will not cure you. It will slow it down and give you a false negative.
Vowst is good poop in pill form. Which is a lot safer and easier than a fecal transplant.
DIFICID is an antibiotic that cures C-Diff but they charge an arm and a leg for this.

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mrsjohn101 | @mrsjohn101 | 5 hours ago
In reply to @cas924 "This was my experience and what was recommended by my doctor: After successful Vancomycin treatment I..." + (show)
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This was my experience and what was recommended by my doctor:

After successful Vancomycin treatment I developed temporary post-infectious IBS. I followed the FODMAP diet for a few weeks which helped. My doctor recommended that I take the following probiotics: Florastor and Visbiome. The probiotics helped me soooo much, noticeable improvement within a couple days. After a couple weeks I slowly started to re-introduce non-FODMAP foods to my diet.

You might want to read the book “Let’s Talk Sh!t” by Hazan, Ellsworth & Baptist. Also visit Dr. Sabine Hazan’s lab’s website: ProgenaBiome.com for testing microbiome testing info.

Another great source of info is the Peggy Lillis Foundation at CDiff.org

Prayers going up that you are healed.

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@cas924 I love Peggy Lillis Foundation. Did you know you can also get C-Diff from pill form antibiotics? Just something to be aware of. Vancomycim is like taking the hair of the dog that bit you to cure you. It's temporary without further assistance from good bacteria.

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cas924 | @cas924 | 4 hours ago
In reply to @mrsjohn101 "@cas924 I love Peggy Lillis Foundation. Did you know you can also get C-Diff from pill..." + (show)
Profile picture for mrsjohn101 @mrsjohn101

@cas924 I love Peggy Lillis Foundation. Did you know you can also get C-Diff from pill form antibiotics? Just something to be aware of. Vancomycim is like taking the hair of the dog that bit you to cure you. It's temporary without further assistance from good bacteria.

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@mrsjohn101 Oh yes. I am fully aware that any anti-biotic, even a topical one, could cause C Diff to return. Some doctors told me it’s the broad-spectrum antibiotics that are the most concerning, but other docs have told me that ANY antibiotic could be problematic. I am working hard to build my microbiome back to be as healthy and diverse as possible so that hopefully, if I ever have to take antibiotics again, my gut will be healthy enough to survive without a recurrence.

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Susan, Volunteer Mentor | @grammato3 | 1 hour ago
In reply to @mrsjohn101 "@emstorm words from a world renowned infections disease doctor, Vancomycin does not cure c-diff. It only..." + (show)
Profile picture for mrsjohn101 @mrsjohn101

@emstorm words from a world renowned infections disease doctor, Vancomycin does not cure c-diff. It only gives a false negative. That is why so many people get it back once they leave the hospital or SNF. It does slow it down from its full blown state. But it is taking the hair of the dog that bit you to cure you. It is only a temporary cure. Good luck.

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@mrsjohn101 Today is my 10th day on Vanco without significant improvement. GI just ordered Dificid so between that, my blandest of bland diets and a BioK per day I’m hoping I’ll finally have some improvement.

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