Lichen sclerosis diagnosis correct?

Thank you for all your comments and suggestions. I saw my gyn again and results are some scarring, a small open sore (very painful), all areas painful to touch, but no itching. She prescribed estrogen for sore and other small area and wants me to continue clobetasol which seemed to help. Scheduled for a checkup in 8 weeks.

Has anyone experimented with their diet? I’ve read that foods high in oxalates and histamines can irritate symptoms for LS. I’m doing more research but was wondering if others have tried this.

Can’t seem to find a way to edit my post but I noticed that I said the hydrocortisone seemed to work and I stopped using it, but what I meant to say is that I continued to use it. Sorry about that.

I'm using Clobetasol 2xs daily for 2months. No issues with creme.
Taking tramadol for pain 2xs daily. Trying to manage pain.

When I have an uncomfortable flare up I get a urine culture for a UTI as the symptoms are similar. But, most times there is no infection. I do use a topical corticosteroid cream. I’m a 72 year old woman. I had ovarian cancer in my 30’s so I know my condition is caused by lack of hormones.
I’d like to hear from others about their experiences with lichen sclerosis.

@annieparker51 Welcome to Mayo Clinic Connect! I’m glad you found the site! I’m going to give you the link that will show you all the other sites for lichen sclerosis.
https://connect.mayoclinic.org/group/autoimmune-diseases/?search=Lichen+sclerosis#discussion-listview
This will give you all the discussions on LS (and the list goes on to another page or two). Just click on any link and it will take you to the discussion.
The other members will probably stop by in the morning with all their information.

Wow. Historically congrats. Being recovered from ovarian for 40 uears is really something. It is sadly not usually discovered early and back then, oncology was much fifferent than now.

I have Oral lichen planus, different than body, but still pretty miserable. I do imagine tho that genital has to be the worst. So sorry.

Thanks to everyone for the quick response to my diagnosis. It’s always helpful to learn from others. You’ve been most helpful.
I love this site!
For those Canadians out there ….. Happy Thanksgiving 🍁🇨🇦

There are four types of lichen And I have three of them. If you are finding out now, you are lucky. I’ve developed it when I was 23 and I am now 75. When the doctor found, it didn’t know what it was. It was decades later before I got a name.
I have found out if I get stressed or worry about something I have more issues. I was told cotton underwear only. There are many websites out there for medical centers and universities that are very informative..
Read everything you can and make sure if it’s online it is a legit you could also check “Google scholar.”. That has more research on it.
You have been through a lot and it sounds like you’ve taken good care of yourself. Education is the best we could do for ourselves and every day they are learning more.
Wish you the best

Hi Minnosta10 …. Thank you so much for that information. It was incredibly helpful. I have been through a lot over my lifetime (3 time cancer survivor) so didn’t need this annoying diagnosis. But, that’s life.
😊

I have been on 2 meds that keep my issues in check.
Clobetasol propionate ointment & Estradiol vaginal inserts three times per week.