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In 2021 I was diagnosed with multiple myeloma and amyloidosis. Stanford put me on a drug regime recommended for light chain amyloidosis . Treatment was called dara-CyborD. They sent the treatment plan to my cancer center in town who administered the treatment. It was 6 months of severe chemo, with several drugs. then weekly shots of daratumumab. My lab work was sent to Mayo clinic in AZ. Doctors are amazed how well I did on treatment. My chemo doctor said she never expected to see me as well as I am today. I still have amyloidosis but the multiple myeloma is basically gone and I am not worried about going on dialysis now. I was given the choice of stopping the shot or keeping it for maintenance. I decided to keep on doing the daratumumab. The only side effect I have is being extra tired the 2nd day after my shot. Doctor has me taking famciclovir daily to prevent shingles. (I am 87)

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I was being seen for the threat of multiple myeloma and was diagnosed with MGUS and later with non-Hodgkin's Lymphoma, Mycosis Fungoides and when I was sent to Moffitt, I was told I was in remission, without "any" treatment. I still have the weird looking rash, which is now brown instead of red/purple but just need to follow with dermatology and if another spot of red/purple shows up, go to Moffitt immediately for a biopsy. In the meantime, I continue to go to FL Cancer and receive iron infusions, B12 shots, ieon and B12 supplements, labs, etc. My next big set of labs is in November, as is my shoulder replacement. When told I was in remission, I was shocked, and my PCP said, "Mama, there are miracles." My new PCP said that this happens often, with it coming and going . . . so I play the waiting game and hope nothing gets worse with either cancer since I already have too many other health problems. However, I almost feel guilty when I'm sitting there getting iron and seeing others getting chemo. It's like, Why am I here? But, I also feel very fortunate to be there before it's too late to even treat these diseases. This has taught me patience, which I really lack. I always want to know immediatly what is wrong, how to treat it, etc. That's how I deal with it. I also research all the time. With 5 children and 18 grand and great-grandchildren, they call me "Dr. Mom." My youngest daughter was diagnosed yesterday with Lupus and before that, with Hashimoto's and sent a msg for me to research the meds they want her to take. My mother was an organic gardener and a health food nut. So am I. I am 79 and still try to cook food from scratch, but with this entire hand/arm/shoulder that constantly kills me, I am directing some of the cooking. We've always taken supplements, ate well, etc. but still this entire family has so many auto immune diseases that it is almost hard to believe. I am sure it's just this horrible system that we live in and no matter what we do, we still get sick. I still enjoy life and want to be here as long as I can, as most of us do, so I just try to keep a positive attitude and thank God that even with all my health problems, I'm still here, and I have a hope for the future, that if I die, there will be a resurrection to a life on a paradise earth. "Just a little while longer, and the wicked will bee no more. . . but the meek will possess the earth and they will find exquisite delightg in the abundance of peace." Psss 37:10, 11

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