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Myelofibrosis

Posted by dax1million @dax1million, 3 days ago

My husband has myelofibrosis. He has low platelets and has had 72 platelet infusions since the first of February. His cancer doctor started him on Vonjo three weeks ago, platelets are still low. Does anyone else have experience with Vonjo.

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1pearl | @1pearl | 20 hours ago
In reply to @davi0937 "Thank you @1pearl - maybe we will do the BMT at the same time 5 years..." + (show)
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Thank you @1pearl - maybe we will do the BMT at the same time 5 years from now! I’ve read the CALR is the least risky mutation- that is good!

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❤️

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lyd0218 | @lyd0218 | 12 minutes ago
In reply to @heimbca "@hanya" + (show)

@heimbca that’s good to know you are having no issues. My bone marrow shows I have MF and PV. At this time I’m only on hydroxyurea. My doctor is very dismissive of my symptoms so I’m in the process of seeking out a new doctor.

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