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Suddenly much better
I am approaching the 3rd anniversary of this blasted disorder, and have successfully tapered to 1.5 mg prednisone daily. But PMR has been ever present until one week ago. When I took my daily walk through the woods, I noticed pretty quickly that it no longer felt like my thighs were bound by an elastic cord, and my step felt much lighter--walking had become the joy that it always had been before PMR. My balance is back. My shoulders don't hurt. I can tell that the PMR hasn't quit, but for the present it has loosened its grip.
It took me two days to realize what had changed in my life, and perhaps why my PMR had lessened. I had pulled out my old cheap vibration plate to help with lower back pain (which is does). I used the plate for several days. PMR stayed calm; life looked suddenly much better.
There is no research on PMR and vibration, but if you ask one of the chatbots, as I did, you may find that WBV ("whole body vibration") can lessen inflammation, among other benefits. So it makes sense. I'll report later on whether or not my good fortune keeps up. Meanwhile, it's 15 minutes a day on the vibration plate.
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It is great to hear that your pain is less. Hopefully your PMR will go into remission. My first bout with it lasted 3 and half years with the last six months going back and forth between 1 mg and 1/2 mg prednisone. I tried a vibration plate between my two occurrences of PMR to see if it might help my bone health but couldn't take the way it made my head feel inside. It felt good on my feet but not so with my head and seemed like it was affecting my eyes so I stopped using it.
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4 ReactionsI was sucessfuly treated for PMR, ended in 3/23 with a slow taper of the prednissilone that I was on. Then in 6/25 I had general anesthesia for the placement of a mediport for infusions. (My veins were shot.) I awoke from the surgery groggy but fine and was sent home, where I fell asleep for another 2 hours. When I awoke, I could tell all was not well. I had the same kide of muscle pain (exactly) that I had with PMR. And it got worse until it was all I could do to get out of bed to use my potty chair. It got worse about 3 days then started to let up and took about a week to resolve. I didn't take anything, Tylenol didn't help and I wasn't going to self medicate. I made lots of phone calls to let everyone know what had happened but never had a call back to find out the drug. I still think it was a IL 6 reaction. Anyone have a similar experience?
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1 Reaction@suetex if you still want to know you can make a written request for the records made during the procedure. The written request will not be ignored like a phone call can. Trust me they have a record of the procedure. If you use a portal for communication with the doctor, simply ask politely what you need to do it get a copy of the medical records of the procedure.
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1 Reaction@suetex I had two flares in the the first year after stopping steroids. It has now been 3 years with no return. My opinion would be that you are susceptible to the disease during that time. Sort of a resetting process. Your medical response I also believe is typical. They wait to see how far your willing to push it. Glad your better.
@jabrown0407 Thank you for that information.
@tuckerp Interesting thoughts. Tell me if you can, do you think anything triggered them? In my case, I was struck by how powerful the pain was. And how exactly alike the pain was to my PMR pain.