Confused about a "mild" Alzheimer's diagnosis.

I read recently that when they say “I want to go home” it is because they don’t know where they are and they want to be in a place that is familiar to them.

I hope this helps?

@kjc48
My husband also started Lequembe and has had his 3rd dose. The very first time we went for an infusion, the nurse said that it could take up to 5 months before seeing any results. My husband is annoyed at having to sit for 2 hours doing the treatment and I have tried to convince him that is going to help. He is still quite capable of getting to places unless they are new. I am so frustrated with him not trying new things when encouraged. I have good days and bad. It is good to know that there is a place that we can vent. Sending hugs!

@rebbie28
Thank you so much for sharing. I didn't know about seeing results in the 5th month. Gosh, I sure hope so. My husband goes for one hour, and they hold the first time was for an hour, the second they held him for another 30 minutes, and this last time, they held him 15 minutes after the infusion. I was told that after that, they will give him the infusion, take his blood pressure, make sure he's okay, and then they allow him to leave. Keep me posted @rebbie28 about your husband's infusion progress and I"ll do the same. Thank you so much for sharing today. My husband is seeing right here and we're talking about this.
A great share.....

Based on what you have described, your husband is well into the moderate stage of dementia. My husband also can be quite "normal" in the doctor's office yet he cannot manage his diabetes, medications or finances. I do all that now. Fortunately for me he doesn't fight me on it, only on getting in the shower. The one thing that has helped me immeasurably is to learn as much as you can about the stages of dementia and what symptoms you are likely to see in your husband. This can help you anticipate and prepare for what the next challenges might be. There is a lot of information on the Alzheimer Association website and practical information and tips on Teepa Snow's website: Positive Approach to Care. Please continue posting here as it is so helpful to know that others are dealing with the same situation as you are and want to support you with this painful journey. God bless you and your husband with courage and strength.

@rebbie28
I had to reach out; I needed a Mayo connect friend. Today wasn't a good day.
My husband is still paying the bills but that's up and down, missed payments, up and down trying to log on to his PC accounts. He gets irritated easily, and that was never my mild mannered husband. Then he was hitting all kinds of buttons on his PC, where he was locking himself out of his accounts. I need to take over the bills, so I guess that's next in all of this. Thanks for letting me vent. I'm normally so positive but today, but boy he pushed my buttons.....I'm curious, is your husband on that brain supplement too, Cerefolin? Mine is along with the lequembe infusions.

@kjc48 I am in a very similar situation. I have taken over the finances, however, often my husband gets upset and says he is losing control of his accounts and that I took everything over without his knowledge. Well this is true because I had no choice. I do sit with him and do all the bill paying with him at the kitchen table but he doesn't remember that he was involved. It is very frustrating but we were getting past due notices as well or he was paying bills twice.

You are not alone. It is up and down with him but lately he has had some very tough days. I have found this blog to be helpful just knowing that there are so many of us in the same boat.

@sandyar Thank you for your note today; I'm a wits ends worried sick over all of this. I watched Billsvideos on this Mayo Connect last night (all three of them) and I have to admit, although I was more informed, the seriousness of our situation with care giving, finances, knowing when to tap into care resources, and what to expect in the 7 stages, becomes the stark reality of what we're dealing with.At the same time, I now have to decide what to do with my living situation since we've been in a hotel (mold in our house) and I'm at the crossroads of fixing it and selling. I appreciate your sharing about the past due notices and paying bills twice. Same thing here so I'm going to do what you are doing. Most are on auto pay so I'm trying to see what he's paying.

@kjc48
Mine is on Galantamine. He takes it twice a day. I am here to listen any time. It is good to have someone who can relate. I hate to keep burdening my friends as they have their own problems., but they do listen. I also have those up and down days with frustration and anxiety.
Hang in there and positive thoughts!

@rebbie28 Yes, I'm glad to have connected with you, as this morning, I'm going through my papers and trying to lay out what I do. What makes it even more overwhleming, we had to get out of our house due to mold, have been waiting for a bank equity loan approval, which has been almost 3 months....and been in a hotel. So I'm really struggling. I go into a rental house on wednesday, which I hope will settle me down, after trying a first rental having to move out for mold in that one too and 30 ant and pest bait boxes all throughout. I lost my 3 months deposit on that, so now I have to get an attorney on top of what's happening with my husband. I'm not complaining, I do believe there are others with a worse situation, but why do things happen at once. Then I've had infections from the mold and got diverticulitis in the mix. Oh brother, so thank you, thank you for being there. I haven't heard of galantamine. I'll have to look that up. Interesting my husband remembers to take his cerefolin brain medicine but not pay the bills. Strange disease the ups and downs and what they remember or don't.

I am so sorry you are going through this. You have a lot on your plate. I hope the new rental works out!
I also wanted to let you know that our neurologist set us up with a speech therapist. He is not having trouble with his speech, but she is reteaching him how to analyze things and new ways to remember. She is going to meet us at his infusions which should take his mind off of them.