Connect
Pancreatic Cancer Group: Introduce yourself and connect with others
Welcome to the Pancreatic Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with pancreatic cancer or caring for someone with pancreatic cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Volunteer Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Pull up a chair. Let's start with introductions.
When were you diagnosed with pancreatic cancer? What treatments have you had? How are you doing?
Like
Helpful
HugInterested in more discussions like this? Go to the Pancreatic Cancer Support Group.
Connect
Hi, just wondering what type of pre-meds would the doctor prescribe before chemo. I will be receiving chemo & I am preparing myself. Thank you
My hubby was diagnosed in Aug with cancer in head of pancreas with liver mets. He is on Coumadin for mechanical valve which always causes problems . He had a gastric jejunostomy bypass so he can eat as the tumor blocked his small intestine. Dr has said no candidate for surgery so he has opted for pain management at home with Hospice. He is ambulatory with walker but losing strength daily. So far has lost 25 lbs in 6 weeks. It's getting very stressful. I can get out fir short periods but I would like to know what to expect and when. One nurse said Portal vein will block and swelling and ascites. Blood clots etc. I am a retired nurse but this is all new to me. He just wants to die and I hate to see him in so much back pain. He fears constipation from Oxy so just takes Tylenol which is only mildly effective. Thanks for listening. It's good to see positive stories in the midst of this.
-
Like -
Helpful -
Hug
6 ReactionsI'm a long term survivor -- luck. I was diagnosed with the most common kind of pancreatic cancer in February 2016. I was borderline for the surgery but had the Whipple procedure in July 2016, and for the following 9 plus years my status has been No Evidence of Disease.
I had 2 positive lymph nodes after my surgery, so was deemed at stage IIB.
The outlook looked grim at various times. We all must take it one day at a time.
CG
-
Like -
Helpful -
Hug
5 ReactionsLost. My wife is 78. She has battled pancreatic cancer for over 5+ years. During the pandemic her colon was removed. She is taking part in a trial at a nearby hospital. Two weeks ago her CA19-9 numbers decreased. This was the first decrease since the trial began. The new number increased some 20% to over 100,000 I am at a loss as what I can do. She sensed there was a problem as she experienced vomiting on several occasions. She saved my life when she married me 31 years ago. Hoping no praying Mayo has some ideas.
Thank you 🙏🏻 so very much.
-
Like -
Helpful -
Hug
6 Reactions@castell Thank you 🙏🏻 so much
-
Like -
Helpful -
Hug
2 ReactionsHello @dyas and welcome to Mayo Connect. I appreciate you sharing about your wife's journey with pancreatic cancer. As you mentioned, "Hoping no praying Mayo has some ideas," I'm guessing that she has an appointment scheduled at Mayo Clinic. Is my understanding correct?
Mayo has excellent specialists, and I hope she finds some answers. Will you post again with any questions or concerns?
-
Like -
Helpful -
Hug
1 Reaction@hopeful33250
We are sticking with the team we have. We have an excellent doctor with extensive experience. The beauty is there is Mayo to call. Their years of experience invaluable.
-
Like -
Helpful -
Hug
2 Reactions@kuma
“No Evidence of disease l” did “scans” give rise to this?
None
@ardithbjorge, welcome. It looks like your message is incomplete. If you're having technical issues, send the moderating team a message using this form https://connect.mayoclinic.org/help-center/#get-technical-support
Do you have an introduction you'd like to post or question to ask?