Spinal cord stimulator support

Posted by robyng @robyng, Mar 27, 2024

I recently had a spinal cord stimulator implanted and would love to hear from others who have one and their experiences.

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Profile picture for stantallusa @stantallusa

I had a metronics put in. I was not wanting to put anything in permanently. But finally got talked into it.
Have had it in for a bit over a year I think.
I have heard great things about them. But me not so much.
I see the commercials showing a couple laughing and holding hands walking in a field.
Not my experience.
Not sure if it’s more of a trading issue or if it was just the wrong answer for me.
But, so far, it has been very disappointing.

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@stantallusa may I ask, what is your condition?.. I’m fused and soooo scared to even do the trial..

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Profile picture for brotherchuckles80 @brotherchuckles80

You always hear more negative than positive. Because the people who have had positive results and I'm generalizing tend not to report it. I have had my Abbott Laboratories spinal cord stimulator now going on 3 years and I fortunately have received 100% positive results in pain relief in the lumbar area. So there is a positive out of many who do not report their positive results. God bless you and your decision making. And I always say do your research research research research then make an informative decision. Brother Chuckles 80

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@brotherchuckles80 what condition do you have this implant for?.. no spine fusion right?.. I’m desperate and your comment is the only positive one iv come across but alas I am fused and have a bone mass that I believe will cause problems during the implant.. I’m so terrified I don’t think I’ll be able to go through with it.. sigh!! 😔

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Profile picture for sbrown293 @sbrown293

My husband had the NEVRO unit placed, after the trial. A person from NEVRO called him the day after placement to check pain level. The person adjusted his device while on the phone with him. Communication continued the first week. He was very pleased with the device. Charging every night was a minor issue. He recommended his friends with back issues to see pain management to see if that was something that might help him. It certainly helped his quality of life.

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@sbrown293
I'm glad you are having success with your Nevro. I had the surgery last December 2024. This is for my Complex Regional Pain Syndrome in my foot. Recently, I have had increased pain and sensitivity where the battery pack is. Has anyone experienced this? I shut down the SCS to have a break. I was getting overstimulated.

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Profile picture for rebeccaherdina @rebeccaherdina

@sbrown293
I'm glad you are having success with your Nevro. I had the surgery last December 2024. This is for my Complex Regional Pain Syndrome in my foot. Recently, I have had increased pain and sensitivity where the battery pack is. Has anyone experienced this? I shut down the SCS to have a break. I was getting overstimulated.

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@rebeccaherdina I had the NEVRO battery implanted to replace my old Medtronic unit. I just remember it sticking out on my left side almost like a hockey puck. I finally had everything removed as it did not provide any help.

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I have an appointment with my neurosurgeon this month and asking if anyone has had SCS put in and what results from it ?

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My story is too lengthy and its already been told, but I am a SCS nightmare story.
I personally would never, ever recommend this device.

My friend is a Nurse and refused one, her nephew is a Dr and also told her he woukd never advise one. If you are lucky they help. I had bleds in the spinal canal, a lot of scarring , severe pain at site of battery and my body rejected the hardware. I also have nerve damage to right leg. Drs
minimize the side effects, they can be profound and very serious. Pls research thoroughly. Mine is out.

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I had a Medtronic scs inserted and activated about a year ago. After about 6 years of research and seeing different doctors I was finally diagnosed with CRPS which is sometimes called the suicide disease because of the pain.
Anyway I would say I have 85 to 90% pain relief but still take pain meds to get me up and started in the morning. It’s PN related. Sitting with my legs on pillows with a heating pad also helps me but since it’s mainly my left knee I don’t sit very much.
Hard when you’re 86 but I just carry on.
Good luck!

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Profile picture for lillym @lillym

I have an appointment with my neurosurgeon this month and asking if anyone has had SCS put in and what results from it ?

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@lillym I had a SCS implanted just over a year ago. I had a fusion on L4/L5 in 2019. I still have pain but at least Im able to walk long distances. Sitting and standing in place is difficult for me.
Just know that once you commit to having a SCS implanted, you’re stuck with it for years. I recharge my battery every other day. Let me know if you have any other questions.

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Profile picture for anniesezu812 @anniesezu812

My story is too lengthy and its already been told, but I am a SCS nightmare story.
I personally would never, ever recommend this device.

My friend is a Nurse and refused one, her nephew is a Dr and also told her he woukd never advise one. If you are lucky they help. I had bleds in the spinal canal, a lot of scarring , severe pain at site of battery and my body rejected the hardware. I also have nerve damage to right leg. Drs
minimize the side effects, they can be profound and very serious. Pls research thoroughly. Mine is out.

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I’ve had one for 2yrs now for CRPS in my legs. Lately I’ve been turning mine off and have found that I’m in more pain with it on then when it’s shut off. I’m thinking I want it taken out! But no one will tell me the risks of getting it removed, my dr said that scar tissue grows over the leads so I’m scared to have someone cutting through my spinal tissue/scar tissue😔

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