Slow gi motility with severe constipation
I’ve posted here before under other topics but decided to start my own thread. Diagnosed three years ago
With extremely slow gi motility, stomach down, but symptoms primarily in colon which takes 82 hrs to process. Been to numerous drs, including motility specialists, and just no relief. Also claim some pelvic floor issues so I’ve done therapy twice. My main problem is finding a regimen to maintain some kind of regularity. I’m on Bethanichol, normally for urinary retention, but helps with motility, and Amitiza daily. Then add in mineral oil, senna, dulcolax as needed. The dailies help some, but not enough, so gradually add in others, then diarrhea. Or increase dose if dailies and same. Then there’s the “is it diarrhea or overflow” issue? My gi is little help. All questions go through nurse who never gets details right or doesn’t call back for days. I’d switch, but I have no idea who else to go to as can’t go to just a regular gi. I have been on every constipation med and have even consulted a surgeon re an ileostomy, but that just sounds like a whole new group of problems. Any one there share these issues?
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@bb03 thanks for answering me, I remember you telling me about the pill they watch, and I knew about the barium enema to kinda look to see if your intestines are scrunched up witch cuts the blood flow and can cause dead tissue. I did get approval for the mag citrate and the ducolaxe, they told me if it doesn't work I should probably go to the ER. I had an ER Dr give me Golytley and I drank the whole gallon it almost killed me. My body ingested it, nothing came out. I couldn't breath was shaking and sweating for about an hour. Then I read the cautions on the medicine, if you've ever been diagnosed with ileus or if you are severely constipated do not drink this medicine. Well I should have read it before I drank it, but the. ER Dr gave it to me so I thought it was okay. Last time I make that mistake. I'm just doing a liquid diet until I see the gastro Dr Monday. I haven't had a bowel movement except a small piece since the 24th. I'm starting to hurt , I know how bad it gets, well I know 24 days was so bad I was begging the hospitals to cut my intestines out. I called a malpractice lawyer, they were telling me in some of my X-rays that I wasn't constipated, idk what they were seeing it was 18 days in and I had the practitioner say I had no disternable sign of constipation, it's morbid to me, like a bad dream, they were saying I'm obsessed with having a bowel movement, I said go 20 days without having one once tell me how obsessed you become with it. I told the malpractice lawyer I don't want money they can keep the money I just need help. Ok BB I hope you are doing okay. I'm going to try to lay down. thanks for getting back to me. I'm saving your reply and reading right from it at my visit Monday. Thanks again.
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2 Reactions@bb03 I seen my motility specialist today, she's doing test for pelvic floor, and outlet disfunction???? Still nothing on the ileus, I'll send you my xray from last Thursday, is there any possibility of passing this stool?? I really think I need to consult a sergeon. Please look at this and get back to me. I hope you are doing ok. Did the X-ray go through???
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1 ReactionDefinitely impacted with stool. Dr May order enemas, suppositories and maybe something orally to stimulate the bowels. You definitely need to see a Dr. I’m not a Dr just a person who has had similar problems. You need to always blot out personal information of any kind that is obvious on your x ray at the top right if you post. . Please remove your x ray and if you post it again block out your name and other identity info. Hope your Drs appointment is productive and that this can be resolved.
@bb03 BB I don't know if the Xray came through the last time I tried to send it. How bad is it??? My cousin is a nurse and she said I should be on a liquid diet. My motility specialist ordered some test. Stat. And 8 just seen a new gastro Dr, that said I shouldn't look at the X-rays????? WTH???? He ordered izberella??? something like that??? I told him I'm passing nothing but water, he said I guarantee it's not clear????? I said do you want to see it??? He said take a picture.
@cpeffer - please note that I removed your medical imaging report from your post as it contains personal health information (PHI) and personal identifying information such as date of birth, patient number, etc. For your security and privacy, it is not recommended to upload documents that contain personal information. You are allowed to upload imaging, providing PHI is removed.
@bb03 Bb I hope you are okay, I hope you are getting my messages, I had a gastro Dr finally order a sitz test. They should have done that 2 months ago. I Hope it's not too late. But my specialist in Hershey sent me lab work to see how well my blood clots??? WTH??? Why would she do that???
To see how slow moving your gut is naturally on a daily basis you need to not take any stimulants like ducolax, senna or other before your sitz test so they can see how slow your gut is. Of course you will risk having a blockage. Of course first Ask you Dr what she wants you to do. Your guess is as good as mine about the blood test to see how your blood clots? Like pt and ptt, lft’s? Maybe she thinks your an alcoholic and its affecting your liver thus affecting your clotting factors????? Do you drink? Even if you do I don't see the relation with constipation or bleeding? Maybe you told her something you didnt say here on mayo. I guess alcohol could slow the gut down. A sitz study is just swallowing a pill that you will eventually pass, way longer than the average person. It’s not invasive. I had a sitz study and I didn't have to have any blood test. My blood test are perfect. Always ask for explanations? Always question. After I had a bad sitz test meaning the pill barely moved by the last x ray, I was started on linzess 290 daily. I also take miralax and magnesium every night at 7:30 pm. Linzess at 5 am on the dot! Let me know why the blood test and how your sitz test goes.
@bb03 no alcohol in 20 years I was on Subutex for 6 years to get off pain killers, but I'm down from 16 mg to 2, I was taking Klonopin 3 times a week for panic attacks, Adderall for ADHD, but I stopped all of it 2 months ago, when I researched the medicine and realized it could be causing this. I was working outside in June 10 12 hours a day, not drinking water, drinking Sunny D or Powerade but no water, and no fiber, Alot of red meat, It shut my system down and I didn't have a bowel movement for 17 days. Then I talked to my first GI Dr and they told me to drink a bottle of miralax with 64 oz of Gatorade, I finally had a bowel movement, but then every 10 days I'd have to do it again, ever since that 17 days I can't go without the miralax, Then on August 27th I did the miralax and it stopped working, nothing but liquid coming out. Clear liquid no stool. I was already on Linzess 290 for 2 months, the gastro Dr dropped me said I needed a higher level of care. So I started seeing a motility specialist that told me to keep trying the miralax!!! I told her for 6 weeks it doesn't work. and now she's trying to do test that should have been done 2 months ago. I don't take any medicine but Now Amatiza, izberella, thyroid meds, stool softeners , probiotics, my anxiety is so bad I don't sleep for 49 hours at a time. I work 10 hours a day the last 2 weeks, but it's getting bad again, the pressure the pain. I praying for a bowel movement, I'm drinking bond broth jello applause, and one sandwich a day. This ER Dr, William Spencer on September 4th gave me Golyte and it almost killed me. If you've ever been diagnosed with ileus EVER. your not supposed to take that medicine. I didn't read the warnings I thought it was ok since an ER Dr gave it to me. Stupid!!! And ever since then this has gotten worse. I drank the whole gallon and didn't pass a drop!! Couldn't breathe shaking sweating,. Then I had a gastro Dr tell me yeah you did to much. it backed you up worse!!! Another thing before this started I was having grey or light tan stool, I told the first gastro Dr he said my liver function is normal, but I do have fatty liver, he said my gallbladder is normal? Normal duct, no wall thickening?? But my bile can't be right with grey or light tan stools. The motility specialist is doing a liver Doppler and some other test to check the blood flow. I do have 2mm vascular calcifications in my pelvis. So I don't know??? Thanks for getting back to me. This arm test, and sitz test are on the 15th and 23rd. Do you think I'll make it that long before I'm ubstructed???? That X-ray has me so stressed out. I knew I was backed up but I thought I had a chance to pass it still. But I think they let it go to long. I have a malpractice lawyer they are monitoring my case, but they aren't acting until perferation, obstruction, or rupture. They have me placing complaints with my insurance. on any instances that I can put a name and date and facility too. I spent 6 hours on the phone this weekend. I have about 10 more complaints to report. The lawyer has most of the information, I told them I don't want money, I just want medical help. THIS could have been avoided. Thanks for listening. Hope you are okay.
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1 ReactionYes any pain med, muscle relaxer or nerve medication diminishes movement of your gut. I have severe lumbar arthritis and some nerve compression and they wanted me to take Neurontin 300 and possibly Increase to 600 three times a day but after just taking 300 once at night I was stoned and didn’t poop for a week and couldn’t feel myself urinate at night so all I take now is neurontin 100 mg with my 100 mg of Celebrex every morning at 7:30 am and I take fish oil, tumeric, R Alpha lipoic acid and osteo biflex at 12 noon each day for the arthritis pain. Oh I use volteran cream to. My gut is so slow, and I was on linzess and miralax and magnesium too when I tried the big dose of nerve med. All said I do a very ripe pear with spinach, kiwi and prune juice smoothie with Splenda two times a day and you can eat this pasta called Carbe diem pasta, gotten from Amazon . I cook it for 20 min, longer than recommended and I put Parmesan cheese salt and pepper in it. It’s pretty good actually. It very high in fiber. All this helps when I don’t go with just the Linzess, miralax and mg. My husband ate some of this pasta and he has a gut opposite from me. He’s been known to poop middle of the night, LOL! Well needless to say he tried this pasta which has a lot of fiber and he stayed on the commode all day and was washed out! It doesn’t affect me and he was dying! Ask your Dr if eating stuff like this is ok. It works for me with my meds but if you can’t take any meds try strict diet. Express your concerns about all this to her/ him. Being right isn’t worth your life. Surgery with an obstruction, well think about it. If you cut into an intestine with hard rock poop you can cause infection from the feces all over into your abdominal cavity and become septic. Look up sepsis. Can kill you quick.
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1 Reaction@bb03 I know I might die, I have a malpractice lawyer, giving power of attorney to my aunt and girlfriend, my bowels aren't moving, I'm scared, the new gastro Dr I seen on Monday ordered the sitz test. But it should have been ordered 6 weeks ago. I'm so pissed off this could have been avoided, I'm really starting to feel bad, I don't sleep I barely eat, because I feel like im just killing myself, Why didn't my first 3 gastro Drs order this test??? Why??? I just don't understand. They just kept telling me fiber water Linzess miralax, stuff that stopped working August 27th
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