Has anyone suffered from lumbar spinal stenosis? Did you have surgery?

Posted by patriciajennye @patriciajennye, Feb 4, 2018

Has anyone suffered from lumbar spinal stenosis and the severe pain that goes with it? Did you have surgery? Mayo Clinic?

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Profile picture for cianci @cianci

Has anyone had L2-pelvis decompression and fusion?
77 year old active male with aches in buttocks and legs for year (coincides with starting statin) has been recommended fot this surgery. Can anybody describe the effectiveness of this procedure?

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anyone else experience overheating of lower back with lumbar stenosis?

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Profile picture for jotansella @jotansella

anyone else experience overheating of lower back with lumbar stenosis?

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@jotansella
What do you mean by overheating? I have severe lumbar stenosis and had surgery and experienced pain, weakness and numbness from low back to feet. Do you mean a nerve pain that feels like burning? Have you seen an orthopedic doctor and neurologist to get MRI and EMG/nerve conduction studies of lower limbs?

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Profile picture for wudalife2 - Walt Freese @wudalife2

I’m so sorry to hear about what you’re going through. I’ve had two extensive Lumbar Spine Laminectomies and Fusions, plus spacers and rods. I only have one Lumbar disc yet to be operated on, plus a lot more up my spine, but you get the point.

The first thing I would tell you is that I’ve interviewed orthopoedic surgeons and neurosurgeons for my surgeries and I would always choose a highly-regarded neurosurgeon over a highly regarded orthopoedic surgeons. There are two reasons for this: 1) Am orthopoedic surgeons is more highly trained in matters pertaining to your spinal chord and central nervous system - where there is the most risk in an operation on your spine, and 2). A neurosurgeon has much more extensive and intricate training. If a neurosurgeon, heart surgeon and orthopedic surgeon are in an operating room together, the neurosurgeon is always the leader for just this reason.

Next, I’d want to know if your lumbar spine pain is affecting the functioning of your arms, legs, or other parts of your body outside of your spine. My neurosurgeon decided to operate on me the first time because my right leg/hip wasn’t functioning and made if difficult to impossible to walk, depending on the day. My second surgery took place only after my right leg and hip made had me limping severely and my right glut was in non-stop spasm. I’m not a doctor, but I do know that my neurosurgeon (and many others) do not operate on people with back pain alone. (I believe one-third of adults in the US report back pain.). I’d still see a neurologist associated with a practice that includes one, or more neurosurgeons. My bet is, though, that they’ll prescribe alternate, non-surgical forms of treatment.

One more note: please be cautious about neurologists, surgeons, or pain management doctors who prescribe opioid-based pain meds any more than short-term (30-60 days). Even if you’re awaiting surgery, opt for non-opioid spinal injections first. They can be remarkably helpful.

Hope this helps! Good luck!

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@wudalife2 I've had all the injections, pinched nerves burnt, muscle relaxers & nothing helped at all, now it's time to see a surgeon.

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Profile picture for brendapb49 @brendapb49

@wudalife2 I've had all the injections, pinched nerves burnt, muscle relaxers & nothing helped at all, now it's time to see a surgeon.

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@brendapb49 I’m sorry it’s reached that point, but hope you find a great neurosurgeon and have an exceptional outcome!

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Profile picture for northstar25 @northstar25

I have L4 & L5 advanced spinal canal stenosis, grade 1 anterolisthesis of L4 &L5. Also Grade 1 degenerative spondylolisthesis. This was diagnosed by MRI. The clinic I am seeing wants to do lumbar fusion. I am worried that if I go through with this, I will be worse off than now (if that is possible). I have heard stories about people who have regretted having fusion. They go in through the abdomen, move some stuff around, then flip you over on your stomach, go in through the back to put the hardware in. Anyone have any experience with this surgery? Please advise!! I need help fast!!

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Thanks

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Profile picture for northstar25 @northstar25

I have L4 & L5 advanced spinal canal stenosis, grade 1 anterolisthesis of L4 &L5. Also Grade 1 degenerative spondylolisthesis. This was diagnosed by MRI. The clinic I am seeing wants to do lumbar fusion. I am worried that if I go through with this, I will be worse off than now (if that is possible). I have heard stories about people who have regretted having fusion. They go in through the abdomen, move some stuff around, then flip you over on your stomach, go in through the back to put the hardware in. Anyone have any experience with this surgery? Please advise!! I need help fast!!

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Now there going to try pt

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