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Long Covid Ear fullness pressure anyone else ??

Posted by jostrowski74 @jostrowski74, Oct 1 11:43pm

Hi I’ve had this ear fullness and pressure for 10 months now and it’s not going away I’ve seen multiple drs ENT drs and all are confused. I have one ENT who is nice and trying everything to help me . Steroids help a little that’s why I’m thinking Covid inflammation but it never goes away. Anyone else have any luck getting better with this Covid issue ?
Thanks
Jeralyn

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ncnurse1 | @ncnurse1 | 3 days ago

LC since 2022-have fullness you describe and it moves inside my head. Also have Tinnitus (I describe as Cicadas) 24/7 along with what I call “sounds like electric wire zaps” around ears sometimes. So after seeing ENT, Audiologist, MRI of auditory nerve in head, trying hearing aids, using the Lenire and more meds/supplements and alternative treatments than I will mention it’s still with me. The fullness is like I am under water or been on plane. So I keep an app with pink noise available at all times. It helps me take the focus off the stuff going on in my head, ears, etc. So sorry we are all suffering with a broken healthcare system that dismisses it all. We gotta stick together ❤️‍🩹

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fourleaf | @fourleaf | 3 days ago

Covid inflammation - Yes

Short version - Immunology

Longer version -
A couple research papers (video) I come across .
Persistence of spike protein at the skull-meninges-brain axis may contribute to the neurological sequelae of COVID-19: Cell Host & Microbe
https://www.cell.com/cell-host-microbe/fulltext/S1931-3128(24)00438-4?_returnURL=https%3A%2F%2Flinkinghub.elsevier.com%2Fretrieve%2Fpii%2FS1931312824004384%3Fshowall%3Dtrue
https://medicine.yale.edu/ycci/listen-study/media-player/listen-town-hall-oct-2023/
The entire Town Hall (video) is very interesting, here are 4 I found enlightening.
8:00 minute - Difference in Percent of Participants Experiencing Symptom (Long Covid – PVS post-vaccination syndrome)
Long Covid - Memory problems, Changed sense of smell, Brain fog, Shortness of breath, Cough, Sore throat, Excessive fatigue, Difficulty speaking properly, Changed sense of taste, Fatigue, Congested or runny nose, Phantom smells, Runny nose, Phlegm in back of throat, Headache, Constant thirst, Night sweats, Hypersomnia, Confusion, Insomnia, Hair loss, Dry scalp or dandruff, Dizziness, Throat pain or discomfort, Postnasal drip, Exercise Intolerance, Wheezing, Swollen hands or feet, Cold/burning lung sensation, Changes in voice, Phantom tastes

PVS - Loss of hearing, Suicidal thoughts, Feelings of impending doom, Palpitations, Tinnitus, Numbness, Internal vibration, Neuropathy, Burning sensations

16:00 minute – Implications
18:33 minute – Hypothesis
37:00 minute - Hope next 6 months

I googled Akiko Iwasaki and came across some other papers. Note Akiko Iwasaki is Head of Yale - Immunology

I showed these and some other papers to my Neurologist, She gave me a referral to Immunologist. This long covid is a new area and also at the cellular level.

It’s a journey, Best Wishes for Your Journey!

🍀
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jostrowski74 | @jostrowski74 | 3 days ago
In reply to @drbf "I'm three years in. I had Ramsay Hunt (no rash) and a mother of a sinus..." + (show)
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I'm three years in.

I had Ramsay Hunt (no rash) and a mother of a sinus infection after I had COVID the first time.

I lost hearing in that ear.

The things that helped the fullness the most were Ayr Saline Nasal Mist throughout the day, and Flonase in the nostril on the same side as the plugged ear, then laying down for 15-30 minutes on that side. (Don't use Flonase if you are on other steroids, unless your doc says it's okay.)

I also took Allegra and regular Pepcid for a long time as they are histamine blockers. I'm not sure those helped at all, but at the time, it was the only thing I could find to try.

That particular issue is much better now and while I do have problems at times, the NeilMed Eustachi has helped a lot when following the directions carefully. DO NOT USE THIS DEVICE if your ears are completely plugged!

A holistic doctor recommended Quercetin. I used the liquid which was kind of a mess, but I think it really helped. I learned this earlier this year, and when my ear plugs up, I use it. She said that she uses it anytime she feels a cold coming on It stops it in its tracks. Also good for allergies. As always, make sure anything you try OTC is compatible with any other medications you're on.

If you have both ears blocked, I would make sure that you don't have a sinus infection. Then if you don't, I'd use whatever your doc recommends for an antihistamine. You might need imaging to see what is happening.

It really seems like no one knows what to do with these eustachian tube issues after COVID!

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@drbf the Quericiten does that boost your immune system because I can’t take those because of my autoimmune system seems to do the opposite and make me more tired snd worse inflammation because my body is already attacking itself. I’m going to try more steroids cause that seems to help overall with the ear fullness and fatigue. Man the fatigue is bad. I was never tired by 7 pm now it’s so bad and I’m only 51. Ugh. Drs don’t care. I’m fighting my pcp on getting bloodwork to check for Covid antibodies because he believes there is no test for that ?? In what century is he living and if he’s lying why wouldn’t he want me to get it done ? So I have a no wait to get it now she go in and convince him to get it I guess. Ugh. Why are they ignoring the Covid issue now and back in 2019 they cared?!

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suefish | @suefish | 2 days ago

I hate the memory loss.

sfishalow

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drbf | @drbf | 2 days ago
In reply to @jostrowski74 "@drbf the Quericiten does that boost your immune system because I can’t take those because of..." + (show)
Profile picture for jostrowski74 @jostrowski74

@drbf the Quericiten does that boost your immune system because I can’t take those because of my autoimmune system seems to do the opposite and make me more tired snd worse inflammation because my body is already attacking itself. I’m going to try more steroids cause that seems to help overall with the ear fullness and fatigue. Man the fatigue is bad. I was never tired by 7 pm now it’s so bad and I’m only 51. Ugh. Drs don’t care. I’m fighting my pcp on getting bloodwork to check for Covid antibodies because he believes there is no test for that ?? In what century is he living and if he’s lying why wouldn’t he want me to get it done ? So I have a no wait to get it now she go in and convince him to get it I guess. Ugh. Why are they ignoring the Covid issue now and back in 2019 they cared?!

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@jostrowski74 It won't matter to find out if you have COVID antibodies.

Work on finding out what is wrong. The virus triggers a lot of illnesses, not just one called "long COVID".

They just work up based on your symptoms. Fatigue is super generic. Blocked ears is very common after having COVID.

Press your provider on getting to the bottom of it. If that one won't help, find another.

I'm almost three years in, mostly in bed with fatigue, chronic pain, no stamina, post-exertional malaise. GI issues, on and on.

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pinkkelly | @pinkkelly | 1 day ago

I have had LC for over a year. I randomly get this pain and pressure in typically only my left ear. It is intermittent, but very uncomfortable.
I had an infection, but even though it’s clear the pressure continues.

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