What could be causing my constant feeling of head pressure?

Posted by xavier99 @xavier99, Aug 15 1:08pm

I have a constant feeling of head pressure 24/7 that has lasted for months. The pressure is all over my head except the back. It improves a bit when laying down. I also have dizziness, brain fog, and severe fatigue probably related to this. Brain MRI scans show no issues. Has anyone had this issue, and what was the cause and solution?

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Profile picture for joanihm @joanihm

Your symptoms are similar to mine. MRI and blood tests normal except I do have follicular lymphoma diagnosed in lymph gland near sight of constant pressure/pain on right side of my face impacting ear, eye, neck and head. No diagnosis from neurologist but my GP and one other doctor believe it may be Trigeminal Neuralgia. Treatment is Lyrica, but it is slow to kick in and causes brain fog. Eating, singing, talking and group interaction trigger more pressure. I have no pain at night. If anyone reading this has recommended treatment, I would be grateful and perhaps it would be helpful to the one posting the original message. Thanks, Joan

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@joanihm I have trigeminal neuralgia I have had it for 8 years. I originally thought it was a tooth ache, so I ended up with a root canal and then had a different pulled tooth until the oral surgeon suggested TN and put me on Lyrica. I had significant relief, but not enough. So Dr’s added baclofen. I take maximum dose of Lyrica and baclofen 3 times a day. This has really helped me. I still get pain towards the middle and end of the day but it is very manageable. Sleep helps reset the pain. I’m so sorry if this is what you have! It took a couple years to get on top of mine and it’s the worst pain of my life including child birth! If Lyrica isn’t working sometimes gabapentin works better. There are also much harsher drugs that I had reactions to that I do not recommend. Good luck.

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Dear Friend,
Your type of TN sound unimaginable. I have the second type which is a steady dull pain impacting ear, eye, no and right side of neck and head. It is with me at all times, but I do find Lyrica helps. I could not tolerate gabapentin. I hope the TN eventually disappears just as it came, sneaking up on me over three years. May it be so for you as well.

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Profile picture for joanihm @joanihm

Dear Friend,
Your type of TN sound unimaginable. I have the second type which is a steady dull pain impacting ear, eye, no and right side of neck and head. It is with me at all times, but I do find Lyrica helps. I could not tolerate gabapentin. I hope the TN eventually disappears just as it came, sneaking up on me over three years. May it be so for you as well.

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@joanihm
Mine is also secondary. Almost always there. Sometimes worse than others. And sometimes I have significant flares that put me down! Good luck to you. It’s no wonder it’s called the “suicide disease”

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Profile picture for scissor77 @scissor77

@joanihm
Mine is also secondary. Almost always there. Sometimes worse than others. And sometimes I have significant flares that put me down! Good luck to you. It’s no wonder it’s called the “suicide disease”

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@scissor77 I know the feeling. Long meetings over food or singing leave me deenergized. I think I will become a hermit. Let me know if you find something to relieve the pain. How does baclofin help?

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I have that , the pressure feeling, sometimes can feel the pulsing through as well mine I discovered is associated with chiari 1.

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Do you also have tinnitus?

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