Flecainide Concern

Posted by ness125 @ness125, 5 days ago

A cardiologist switched me from a beta blocker to ditilazem for PVC and PAT. I’ve been on it for several months and it hasn’t really helped my symptoms. The first cardiologist left the practice so I went to see another one who had me do a stress test. I was told the stress test was normal, however in my hospital portal, it stated I had an incomplete right bundle branch block which was not mentioned when the assistant called me with the results. The doctor wants to put me on Flecainide. When I read the side effects it scared me to death. I also read it should not be taken if you have a bundle branch block. I don’t want to second guess the doctor, but I’m afraid to take this medicine. I’m 72 and in good health otherwise.

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Profile picture for domiha @domiha

@ness125 For what it's worth, I was put on Flecainide about 18 months ago after some tachycardia showed up on a monitor that I wore for three weeks. I have not noticed any ill effects from the med. I was also placed on Eliquis at the same time because I had one episode of AFib. I did not FEEL either the tacycardia nor the AFib. I'm not having any problem with the meds.... My major issue is that with these two meds, ALL pain relievers other than Tylenol are contraindicated. I have arthritis pain that the Tylenol does not touch....and I hate that I can no longer use NSAIDS for relief. I think you are wise to let your doctor know of your concerns and the warnings you have found. Over the years (I'm 74) I've learned that we HAVE TO BE our own advocates when our health is involved! Best wishes! Mike

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Hi Mike, just a thought..Cardiologist did a stress test on me and they shut it down within 3 min for ? Afib...started me on ELIQUIS, also...but he did run the results by a cardiac electrophysiologist, and after a few months of no episodes if AFIB...just svt, psvt, rythm issues, i was offered flecanide which has been great...plus i could start taking nsaids for arthritis again.
If you have electrical issues ,rythm issues request the specialist ...electrophysiologist...could make a difference

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Profile picture for ness125 @ness125

@sjm46 You definitely have to be your own advocate for your health. I will try the Flecainide, if the cardiologist provides a good reason why I should take it. I will be calling the office tomorrow with some questions.

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@ness125 Hi, I've been on Flec about 18 months now, even after an ablation. I've been on the daily max dose of 300, 200 and now I'm on 150 and so for so good with remaining in NSR. I'd ask if a lower dose to start could be tried. They make 50 mg tablets so that low of dose must work for some people.

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Have been on Flecainide for about 10 years now - and one of the lucky ones who has no side effects. I have atrial fibrillation, and am not a candidate for ablation. Flecainide pulled my heart rate from bursts of 185 down to normal rate. Not everyone is this lucky, but I would listen to your doctor and give it a try, requesting that your doctor (or most likely his or her nurse) check in on you frequently at first.

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I have had 2 ablations and after my las afib/flutter episode I went on Flecainide at 50 mg I don't like to take a lot of meds because I do a lot of exercise and have changed my lifestyle for sure! I was told by my ablation doctor that this is the very best medicine for heart issues they have at this time. So, I have stuck with it with great success. Maybe I am lucky, not sure but it is great not to have afib/ flutter and am hoping for at least 1-2 years+ of staying on this dose by trying to keep healthy and strong with a good heart diet. Hope that helps!

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Profile picture for dee2468 @dee2468

I have had 2 ablations and after my las afib/flutter episode I went on Flecainide at 50 mg I don't like to take a lot of meds because I do a lot of exercise and have changed my lifestyle for sure! I was told by my ablation doctor that this is the very best medicine for heart issues they have at this time. So, I have stuck with it with great success. Maybe I am lucky, not sure but it is great not to have afib/ flutter and am hoping for at least 1-2 years+ of staying on this dose by trying to keep healthy and strong with a good heart diet. Hope that helps!

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@dee2468 Thank you for your sharing your experience! I also exercise faithfully 6 days a week and am trying to eat healthier. I’m glad you are doing well on the Flecainide. That’s probably the reason my cardiologist prescribed it. I would love to not feel every heart flutter. I really hope this works for me.

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Profile picture for mbixler @mbixler

Have been on Flecainide for about 10 years now - and one of the lucky ones who has no side effects. I have atrial fibrillation, and am not a candidate for ablation. Flecainide pulled my heart rate from bursts of 185 down to normal rate. Not everyone is this lucky, but I would listen to your doctor and give it a try, requesting that your doctor (or most likely his or her nurse) check in on you frequently at first.

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@mbixler That’s great that you have no side effects. I’m hoping this will be the case for me. Chances are, I will be fine since I have no heart disease or any other chronic health conditions. Thank you for sharing your experience with Flecainide.

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Profile picture for buffyo @buffyo

@ness125 Hi, I've been on Flec about 18 months now, even after an ablation. I've been on the daily max dose of 300, 200 and now I'm on 150 and so for so good with remaining in NSR. I'd ask if a lower dose to start could be tried. They make 50 mg tablets so that low of dose must work for some people.

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@buffyo Thank you for your input. I’m glad Flec is working for you. My doctor is starting me on 50mg twice daily. It’s good to hear from people that don’t have side effects from the medication.

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Profile picture for sup7401 @sup7401

Hi Mike, just a thought..Cardiologist did a stress test on me and they shut it down within 3 min for ? Afib...started me on ELIQUIS, also...but he did run the results by a cardiac electrophysiologist, and after a few months of no episodes if AFIB...just svt, psvt, rythm issues, i was offered flecanide which has been great...plus i could start taking nsaids for arthritis again.
If you have electrical issues ,rythm issues request the specialist ...electrophysiologist...could make a difference

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@sup7401 Thank you for sharing. The cardiologist had me wear the monitor for 3 weeks. When the report came back showing I had 1 episode of paroxysmal AFib and 1 episode of tachycardia, I was sent to an electrophysiologist right away. He is the one who prescribed the Eliquis and Flecainide. I did have a nuclear stress test a few weeks ago and all checked out "fine." From what the docs have explained, the Eliquis is to keep the blood thinner so there is less chance of a blood clot forming in the heart and causing a stroke (I did have a brief TIA... less than 5 minutes... that preceded all this). And the Flecainide (they said) was to help with the Tachycardia. I've noticed no side effects from either med...... the only drawback is not being able to take anything for pain other than Tylenol. I don't know what they would do if I ever had to have surgery. Extra-strength Tylenol, perhaps?? 😉 Best wishes.... Mike

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Oh, that is good to hear, Mike
They have meds to give for pain should that happen...no worries.
Take Care

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