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Living with lung cancer - Introduce yourself & come say hi

Lung Cancer | Last Active: Jan 22 8:18am | Replies (1013)

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@flusshund

Good morning. I'm in southern California, Huntington Beach. When I said no follow up doctor's visit, I meant after this particular PET/CT scan. I was expecting an appointment to discuss whatever they saw. But I guess it will be "no news is good news!"

I already have standing orders for 2 more at the end of May and August. After that I'm guessing they'll go to every 6 months. This doctor did the same thing after my blood clots and PEs. Blood test every 3 months x3, then 6 months. It was after the first 6 month break that my D-dimer level spiked. Then they did an Ultrasound of my legs, a CT scan of my chest, saw a change in the 2 CT scans that were a year apart and it was all downhill from there.

It's my impression that will be the order of things this time as well. Every 3 months, then 6, then once a year. I have a friend who survived colon cancer and he had once a year scans up to 10 years. He just had his last scan in the middle of last year so now he is officially "cancer free"!

Haven't had the knee surgery. My wife has developed an even worse problem with her knee, so she is going to go first. She is getting her MRI next week. After changing physical therapists I found that part of my knee problem was a hip problem. I've learned hip alignment/relaxation methods that have mostly taken care of that problem. And the 2 1000 mg tablets of Curcumin that I'm taking daily have really lowered my knee pain, so that it's now manageable at least.

For this American Lung Association fundraiser, I'm training to climb 1,393 steps in a skyscraper in downtown Los Angeles. I have a 9-week training program I used to prepare. As part of that training I climbed the equivalent of 51 stories yesterday on a StairMaster. Each week gets harder, but I'm hanging in there so far! But I am WAY slower than I used to be. The only reason I think I might be able to do this climb is there is no time limit. In past years I've done the climb in 22 minutes. This year I'll be lucky to finish in an hour! I've been doing this fundraiser for 5 years now. 3 years ago, I was the 6th highest individual fundraiser in the event. I've already agreed to speak at this year's event, whether I'm able to climb or not. We'll see.

Since you're a mentor, is there a group for the spouses of cancer survivors? As I've been telling my wife about this group, she has offered to communicate with anyone that might want to know what it's like to be the spouse of someone diagnosed with cancer. I think her emotional roller coaster ride was even scarier than mine!

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Replies to "Good morning. I'm in southern California, Huntington Beach. When I said no follow up doctor's visit,..."

@flusshund- Hi. I'm glad that you cleared that up! lol. I was worried there. The group for spouses, or care givers is: https://connect.mayoclinic.org/group/caregivers/ Hope that your wife finds comfort there.
I love that you jumped in here because so many people had to jump into lung cancer and surgery and treatments without any idea of what to expect. I'm included because there were no groups back in 1997, and no on-line groups either. Mayo Connect is a one of a kind. Hopefully you will stay with us!