Living with lung cancer - Introduce yourself & come say hi

Aww maraki that is so sweet of you. Blood in spit is a sign of something that is wrong!!!
One time I called a nurse friend because my husband wouldn't go to the ER with a high fever. She told me to threaten him with an ambulance and tell them not to return him until he was well. I did and all turned out well. Lol
Perhaps you could call his doctor to see what he wants you to do?
Wishing you a wonderful outcome to this so that you can have a happy New year!
Merry

@merry with multi focal adenocarcinoma How do they stage that. You said you are stage four. I know each time you are diagnosed with a new cancer the countdown starts over. I need to ask as I have no idea what stage I am at with the lung cancer and need to find out about my copd too. A merry Christmas to you

@sakota- Happy holidays! I don't know the precise math on how they stage it. All I know is the lesions are adenocarcinomas and are staged like they are, like "regular cancers". Some people only have multifocal adenos in one lung. Those with lesions in both lungs, as I do, are stage 4. I don't know what you mean that the staging begins again every time you have a new lesion. Can you explain?
What is it about COPD that you are looking to find out? Have you researched it yourself?

@merry I was told by someone in the research group I was in that the usual number for survival is 5 years.... Now I had the one kind of cell so that was to be 5 years out from when I had that surgery. The next time I had surgery another type of cell was found so then I had to restart from that date for a 5 year . If and when a new type of cancer showed up then you started counting the five year from that date. can't go back to the first time you had cancer unless its the same kind and nothing new...….I should research this..... I don't want to mislead anyone. What I was looking for, Merry, was stem cell for copd and if mayo did that. Think I will check it out more when I come back to mayo if it works , and how far along you need to be with the copd.
I must be a stage 4 like you Merry since I have had it in both lungs......The other thing I was looking for on here is how often you should have your heart checked after having a heart attack but haven't had any problems.....Maybe if I live long enough, I'll find all my answers...…….. And a very special Merry Christmas to you Merry...…..

Ah ha, I get it. After having so many I think that I just plod along until I can't anymore. Those survival time thingies tend to petrify rather than help I think.
I have never heard of cell therapy for COPD. I think though it is for very severe cases. Is this your problem too?
As for your heart- I think that you need to see your heart doctor once a year. I think that this is a conservative guess but a wise one.
Other than adenocarcinoma what other type of cell has been found?
A special happy holiday to you too sakota. take care and keep in touch

@merpreb I agree with you about the life prognosis. It's awful. It' s like a bomb ticking over your head. You are the living example of not giving up hope. I guess no doctor told you about 21 years...My pulmonologist told me that my husband has 1 to 3 years to live. He never asked, I never told him. The oncologists in the hospital said nothing and I was relieved that they didn' t steal the hope from us. We keep going....

Merry. I don’t think anyone can go by the number of years. It all depends on us and God. I had gotten about the 5 year thing until today. I thought I was going to end up with breast cancer and die like my mom when she was 52 and here I am 74. Then my dad had a heart attack when he was 52 and lived 10 years after that. I had mine when I was 62 and survived. I don’t dwell on what happens. We just keep taking one day one step at a time. But. There is a day every once in awhile when things come crashing down. Ok. Onward and forward. Cheers. My copd has went from
Mild to moderate. And I know that’s going to keep getting worse. If stem cell can be proven to work in the near future and I’m a candidate I’m going for it

Yes there is different options, there are clinical studies... my friend who i am caregiver, P.O.A. etc. etc has been under a clinical study since Dec. 2017 and it will or is now the norm of treatment 1 week of chemo/immunology 2 weeks chemo X 4 times 4 to equal 12 weeks and then immunology or 1-2 or plus years as long as tolerated or working - he had labs each chemo/immunology session and same with the immunology - CT-scans every 6 weeks to keep tabs on progress or non-progress or new problems cropping up - this is being done through I.U. Medical/Simon Cancer Center. Check into the college/University in your state that have Medical schools as a part of their programs - also there are numerous Cancer Centers all over the US. contact the American Lung Cancer society - GOOGLE and read their is a lot of very good info out there Just BE INFORMED and ask questions if you don't like the answer keep asking

By way made it through another CT-Scan and his immunology and Stable.

@reibur1951- Am so happy that the CT scan is good! I don't think that the study that your husband is in is yet being used by the public- that's why it's called a clinical study. But they aren't options for the public as yet. There are many many clinical trials around but they have a specific population and so far not much has been done as far as multifocal adenocarcinoma of the lung. How much further does he have to finish the trial?