Can chronic itching be caused by Neuropathy

Posted by Rosebud @rosebud123, Feb 6, 2024

I have had Peripheral Neuropathy for about 20 years.
The only symptoms I’ve ever really had is a lot of tingling, numbness and spasms in the legs and toes.
For the past 12 months I’ve developed this chronic itch that started in my scalp but is now my whole body.
I have absolutely no rash or dryness anywhere.
My neurologist has told me he hasn’t heard of neuropathy causing itching which surprises me.
I’ve been to a Dermatologist who says he can’t see anything that’s causing it.
My Dr says she thinks it’s from high Uric acid.
In totally confused as to what it could be as it’s driving me crazy.
All three of them can only suggest Amiltriptyline which I’m not willing to take as I’m super sensitive to medication.
Has anyone here had the same problem and what did you do for it please.

Interested in more discussions like this? Go to the Neuropathy Support Group.

Profile picture for jchet @jchet

@slkanowitz
I agree with this person. Neuropathy certainly can cause itchiness. They even call it “neuropathic itch.”Your neurologist should know this. I suggest you find a new, experienced neurologist. When my itching starts I have to put on body lotion (fragrance free) right away when it starts. It usually subsides in a minute or two. If I don’t do it right away my itching can get severe and causes red areas under the skin which takes several days to clear up. Good luck.

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@jchet
Is the itching only where you have identified neurpathy?

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Profile picture for lakelariet @lakelariet

@jchet
Is the itching only where you have identified neurpathy?

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@lakelariet I don’t know.

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Profile picture for jchet @jchet

@jchet I should probably clarify my”I don’t know.” As of now it affects my arms and legs, occasionally mu back.

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Profile picture for lakelariet @lakelariet

@jchet
Is the itching only where you have identified neurpathy?

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@lakelariet THANK YOU 🙏

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Profile picture for John, Volunteer Mentor @johnbishop

Welcome @onlinescoop, I thought I would share a reference for you since new members to Connect are not allowed to post links for a short period of time to help keep spammers off of our community. This may not be the same article but I'm sure there is more than one if folks do a search.
-- Generalized chronic itch induced by small-fibre neuropathy: clinical profile and proposed diagnostic criteria: https://pubmed.ncbi.nlm.nih.gov/31838774/

You are not alone with the symptoms. There are many discussions and comments from members on the topic of neuropathy and itching. Here's a link that lists the discussions and comments - https://connect.mayoclinic.org/search/discussions/?search=neuropathy%20and%20itching.

I have idiopathic small fiber neuropathy with only numbness and some tingling but no pain. I also experience itching skin but it's not constant for me. It's good that you are going to the doctor and asking more questions. Do you have a specific neuropathy diagnosis?

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@johnbishop Thanks for the information. I will access it.
I have numbness on my feet, hands, and it is now moving up my legs. I also feel numbness on my lips and nose now. My itching is everywhere especially my face and scalp.
I also do not feel pain.

How were you diagnosed? With the skin biopsy test? There is also a genetic test one can take to see if one has the SFN genes. I will be getting tested shortly.

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Profile picture for onlinescoop @onlinescoop

@johnbishop Thanks for the information. I will access it.
I have numbness on my feet, hands, and it is now moving up my legs. I also feel numbness on my lips and nose now. My itching is everywhere especially my face and scalp.
I also do not feel pain.

How were you diagnosed? With the skin biopsy test? There is also a genetic test one can take to see if one has the SFN genes. I will be getting tested shortly.

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@onlinescoop - I had the neuropathy symptoms 20+ years before finally deciding to get a diagnosis, mainly because the numbness was progressing up my legs. I waited because every PCP I discussed it with told me it was probably nerve damage and they could do some tests to determine if that's the cause but when I asked, if it is nerve damage what can you do to treat it, the answer was always nothing. So I kept waiting to see a neurologist until I wanted answers and I got them. Unfortunately for me, it was there is no treatment for the numbness. The diagnosis was done through nerve conduction tests and a physical examination by the neurologist. I have had several genetic tests but neither showed causes that have a connection with neuropathy. I have often thought of having a skin biopsy test to see if it could confirm whether or not my neuropathy is getting worse but decided it's not going to change or offer any new treatments for me so why have it done.

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Can neuropathy caused recurring candida , UTI and eczema?

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Rose bed. I have terrible itching on my scalp too. I just can’t stop myself from scratching it. I’ve used different kinds of shampoos and none of them seem to make any difference. I get itching on my forehead, in my eyebrows and around my nose I’ll talk to my doctor this next week, but not hoping for any magic solutions. Hope you can find one., Bcool123

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Profile picture for bcool123 @bcool123

Rose bed. I have terrible itching on my scalp too. I just can’t stop myself from scratching it. I’ve used different kinds of shampoos and none of them seem to make any difference. I get itching on my forehead, in my eyebrows and around my nose I’ll talk to my doctor this next week, but not hoping for any magic solutions. Hope you can find one., Bcool123

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@bcool123
I would like to know if you found any help. So far my dermatologis
t has treated me for eye mites now onto allergies. He does not believe this itching is caused by neuropathy, Mine is also the face, especially the eyelids, end of nose and scalp. At its worse it involved the whole face and burns if i rub it

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