Want to talk to others with fibromyalgia: What symptoms do you have?

Pilates has been critical for me. I found a boutique studio and go 1:1 with a trainer so we can modify based on how I’m doing. I also made a little home studio with therabands, light weights, and a TRX suspension system. I find I can work out my pain and at least get some mobility back. Easy does it. I go to the studio once a week and never push myself too hard.

Hi, I'm new here too (not to Fibro but to the forum). Just posted my first post (Have your flares changed over the years?) . Been going at this alone for many years w/o support groups and Drs have been pretty useless to me but starting to feel like an island as flares/symptoms have been changing. Hope we can all be of a support to each other as this Fibro nonsense sucks! lol Blessings to all - M

@oakland99 absolutely you have ti figure out what works for your body and symptoms. Unfortunately that takes so long!
I've had Fibromyalgia for about 5 years now and have found some balance but the flare ups happen for so many different reasons it seems that I believe it will take forever to figure out. So far no medication has helped.

Hello. Just wanted to share my experience, maybe IT might be useful for other people. I began having a lot of powerful symptoms about 5 years ago, almost all of a sudden , neurological , like Burning sensation, body aches 24/7, sometimes unbearable, fatigue, breathing problems, small fiber neuropathy, diziness, weight loss, changes în the skin, Brown spots on legs, etc, all of which could fit în the Fibromyalgia . I believe I got this after a rat bite in my leg, however, since most of the infectious tests came back negative , I was given the presumptive diagnosis of Fibromyalgia and small fiber neuropathy . I've tried treatments like antibiotics, antiparasitic and some antivirals. None of them worked ...finally I have tried ivermection who proved to be a miracole, since IT took away 70 per cent of the pain. Now, I know that my case might be a Little different and maybe iver worked because most likely there is a virus/ parasitic/ bacteria cause, I believe IT can be relevant . I am not like I used to be , my energy levels are stilul low, but most symptoms improved a lot. Until I can find the exact cause , I am happy I found this treatment.

What is IT?

General soreness and tightness all over. Sometimes, the soles of my feet are sore first thing in the morning so I keep a cushy rug by my bed. Things that help are daily stretching, occasional hot bath in Epsom salt and magnesium malate and magnesium glycinate. However, I would never be able to sleep on my sides without Lyrica/Pregabalin.

Pain all over. Burning sensation a lot of days. Very fatigued Do what I can in morning rest in afternoon
Swimming, or relaxing moving your body in pool helps in warm water. Also, on U Tube very light exercise like Qiong. Meditation also helps to calm body and mind. Have had this only a year. God Bless all who have had this 10, 20 years or more.
I feel that trauma & high stress are the cause for me. Some people don't believe that you have this, that it is al in your head, So I find not to talk about to friends. Support groups would be best. I see a pain management PA. Also, a counselor in pain management. She said most of patients had some kind of trauma in childhood. I don't think I have found any meds to help me. I am 74 and very blessed that I didnt get this earlier in my life.
God Bless and Good Luck

I agree that it can be a great support network and I've seen that in some groups. But some "support groups" get taken over by complaining and finding problems in the disease, the medical care, or the medications. I don't mean an isolated incident, but all piling all the negative on top of itself. I am new here and hope this will be one that focuses on positive things we've found because that can benefit everyone. Negative news makes a better story, but I hope we build here. Sorry to post to you. I meant it in response to your comment about it being a great network. I hope to help build!

Hi. I'm new here as well. I have noticed that I flare more when I'm sick, when I don't get enough or regular enough sleep, and maybe a little from the seasons changing. I also notice that if I move less, I hurt less, but then I lose mobility to stiffness and I just hurt all of the time. So, on a positive note, I find that by moving throughout the day and stretching more I feel less stiff, like warming up to go run in a race, I need to warm up to get out of my desk chair after a few hours of sitting in one position. I also notice I hurt a lot more if I eat too much sugar. And soda. One can a day I can process if I don't do it more than a few times a week. More than that and I'm hurting.
But overall, my meds keep things to a pretty dull roar and I just try to keep on top of those things to feel better.

Hi! I am new to this platform, too. Was diagnosed in my 20s with Polymyosistis which has been in remission for many years, but in the past 3 years I have had terrible muscle weakness, pain, fatigue and burning/tingling in hands, feet, legs. Was diagnosed this summer with acute stage 4 Fibromyalgia and early stage neuropathy. May I ask what meds any of you are taking? My Hopkins rheumatologist wants to try Savella, but my insurance won't approve until we try a different class of meds. If anyone on here has taken Savella for their Fibro and neuropathy symptoms I would like to hear about your side effects, and any success with it. We are hoping to get approval soon.