New alarming symptoms
I have been diagnosed with Fibromyalgia for over 20 years now. My main symptoms were fatigue and minor pain in muscles.
Three years ago I began experiencing severe dizziness and syncope (fainting). No one can figure out why or ever connected it to my Fibromyalgia. In the last year, I have lost over 20% of my body weight (mostly muscle mass in my legs and arms) and for the last three months I’ve been experiencing extreme pain in all my muscles They have tested me for everything related to inflammatory and autoimmune diseases and even did a MRI of my brain. All of it came back negative.
Could this all be the Fibromyalgia? Has anyone else experienced these symptoms?
I would appreciate any and all advice, experience and opinions.
Thanks
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If indeed you don’t have a heart attack while you have all symptoms of a heart attack then I think you have functional neurological disorder. There’s specialists for this disease so I hope you can find someone to help! Wish you best of luck!
Hi, 👋🏿 I'm new to the group but not to fibro Plaqued with this awful condition about 5 years ago following RNY with a scary post-op complication but that part completely resolved... Research of course shows severe stress or trauma can kick start it so guessing that may have done it. However, going all the way back I can definitely see how it's been signaling it's presence since my childhood which was heavily sprinkled with trauma mostly sexual which of course is a whole nother conversation---CPTSD. I'm almost 50 and pre or perimenopausal may I add lol 🙏🏿 so many prayers for all of us with our various presentations of this curse!
you sound just like me. i have fibro, neuropothy in my feet and hands and MS. i hurt all the time, even in bed because my back and hips hurts aweful. i try to hang in there and have wonderful family and my husband is an awesome caregiver. at 74 i've gone through problems for over 1/2 my life and i'm still moving as much as i can.
Unfortunately yes I have along with Migraines, fibro brain which often makes me have odd conversations (forget what I was talkong about and or my brain has one word in it but another comes out if my mouth) and wrist pain along with other odd symptoms.
I was recently diagnosed with Fibromyalgia with mild Rheumatoid Arthritis.
I would check my blood sugar and take my BP when it happens and often find out one oe the other is off. Not diabetic and no high or low BP problems normally just when these episodes happen. I knownthey have never found an answer except to say this could be part of Fibromyalgia. Doesn't solve the problem I know, but I just stay home and don't drive when it happens and the more that I have them the more I am intune to them coming and plan accordingly for my day/days.
I have had fibromyalgia for over 20 years. Had symptoms as a child. Manifested after major surgery. I am 77 and it gets worse as years go by. My deep tissue massage therapist got me through teaching me all the ways to stretch, press out trigger points, use massagers, tennis balls. She had to quit. I now have chronic burning in my legs and numbness. Fibro does get worse with age. However I believe some of my symptoms are from vertebrae deterioration with arthritis. I have had three vertebrae fusions, two hip replacements and one knee replacement. Keep searching for answers. Jesus keeps me going. Slowly but surely.
Good luck to you. Having fibromyalgia during menopause is not fun (to put it very lightly). I was diagnosed with fibromyalgia in the early 90s but, based on my history, my doctor said I probably have had it since around 1981, when I was 19. Add several muscular injuries and minor breaks (toes) and menopause was tough.
I also have bipolar II disorder (with hypomania) and had no idea what was happening to me mood-wise during menopause. My meds were helping some but I felt out of control. Since I don’t have insurance, my doctor would suggest increasing or decreasing my meds (carbamazepine - Tegretol - and sertraline - Zoloft), but never suggested other meds or changing them. Maybe that’s not a PCP’s thing.
Now at 63, I’m on the other side of menopause and can see where my mood swings were heightened by my hormone changes and stress. I had 2 women bosses who were post-menopausal so wish they had told me my anxiety and mood swings most likely were caused by - or at least heightened by - menopause. Instead, they let me go after over 10 years. I was devastated.
I hope your HRT helps. I couldn’t take hormones or even herbal supplements because of the carbamazepine. They’re absorbed through the liver and would affect my carbamazepine levels. (I’m now on statins cuz years on this medication has affected my cholesterol. I came in at around 325 after being in the 220s for a few years.) Now I have added vitamin b complex and lysine because it’s affected my blood vessels. *sigh*
I’ve been in recovery (drug/alcohol) for over 28 years now. I know that reaching out to groups like Mayo and Patients Like Me has helped immensely. If nothing else, it allows us to see that we’re not alone, even in our pain.
🫶🏻
Hi it makes me so sad to hear this, I'm 48 and the last 5 years I have had arthritis, IBS, fatigue, pain in my joints, foggy brain and vertigo . The doctor made me feel like I was a hypochondriac with comments like " back again? What is it this time?" I kept asking if it was fribromyalgia and was shot down every time, in the end I insisted on being referred to a pain specialist and after going through all my symptoms she said absolutely fribromyalgia and was shocked the doctors never took it seriously. Unfortunately all I can advise is keep pushing, make a nuisance of yourself if you have to but don't give up ! Join a support group because although it doesn't help with the physical pain it will help with the mental side xx