Ischemic stroke, now mobility more limited, looking for encouragement

Posted by grrranny @grrranny, May 21 3:52pm

I lost strength in my arms and legs and could not get Off the floor, so we called911 And was taken to the ER. After two days went to Acute rehab where I have now been for two days. Anybody else have this? Left side, especially arm and hand are paralyzed I’m 82 and looking for encouragement. Thanks!

Interested in more discussions like this? Go to the Stroke & Cerebrovascular Diseases Support Group.

Profile picture for irishnanny3 @irishnanny3

When I had a stroke, I had almost no symptoms
Like you , very healthy, don’t smoke, not over weight
My dr did bloodwork and learned I had Polycythemia
Vera ( had never heard of it)
which is a blood cancer that causes clotting. It develops over the course of a lifetime
I am on a blood thinner and
Hydroxyurea to prevent
any more clots/stroke
My mri at the hospital showed that I had been having TIA’s for some time
I got lucky I was diagnosed

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Glad you were diagnosed, @irishnanny3. Sorry to hear you're been having TIAs for some time.

Since you mentioned being diagnosed with polycythemia vera, I'd encourage you to take a look at this or other PV discussions in Mayo Clinic Connect's Blood Cancers & Disorders support group:

- Polycythemia Vera: Just been diagnosed https://connect.mayoclinic.org/discussion/polycythemia-vera-1/

How are you doing on the blood thinner and
hydroxyurea?

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Profile picture for Lisa Lucier, Moderator @lisalucier

Glad you were diagnosed, @irishnanny3. Sorry to hear you're been having TIAs for some time.

Since you mentioned being diagnosed with polycythemia vera, I'd encourage you to take a look at this or other PV discussions in Mayo Clinic Connect's Blood Cancers & Disorders support group:

- Polycythemia Vera: Just been diagnosed https://connect.mayoclinic.org/discussion/polycythemia-vera-1/

How are you doing on the blood thinner and
hydroxyurea?

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The blood thinner and hydroxy have kept numbers in safe range. Two biggest problems are multiple skin cancers, requiring MOHS surgery on my face. Both the PV and the hydroxy make them occur frequently
Other issue is I was diagnosed with central pain syndrome ( my stroke was in thalamic region of my brain)
Entire left side of my body affected. Have tried every option to treat available to no avail.. every med, including fentanyl and methadone, acupuncture,
Marijuana , pain management specialists ,
Physiatrist, neurologist, etc
I had NHL in the past and
got through that, but this is
my challenge

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Profile picture for devoted1 @devoted1

Had an ischemic stroke last May that affected my right side. Having bouts of crying at the drop of a hat and still trying to gain strength in my hand. Is anybody going thru the same thing? Also needing encouragement. I'm only 57 and it's been tough opening up to anyone even though my event, thank God, was mild. It still was traumatic to me!

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Had ischemic stroke #3 March 24. Lots of little symptoms over long period of time, relied on PT for help and did. Walking and balance, impinged shoulder, etc. using repatha instead of statin.

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Profile picture for devoted1 @devoted1

I had physical & psychological therapy only. I'm realizing that it takes time to completely heal; some longer than others.
I'm just glad to know it's not all in my mind that after a year, I still have some issues!

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@devoted1 - how is your recovery going?

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@lisalucier
My recovery is coming along day by day. I forget some things at time but my memory is gradually getting better. I still have trouble pouncing some words too at times. I'm just glad to be as well as I am and blessed to be here. Thanks for asking.

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Profile picture for devoted1 @devoted1

Had an ischemic stroke last May that affected my right side. Having bouts of crying at the drop of a hat and still trying to gain strength in my hand. Is anybody going thru the same thing? Also needing encouragement. I'm only 57 and it's been tough opening up to anyone even though my event, thank God, was mild. It still was traumatic to me!

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@devoted1 - I wanted to let you know I moved your post here where others were talking about ischemic stroke. Hoping they can let you know if they or a loved one is going through the same thing recovering from this and provide encouragement. Please meet @grrranny @g1315 @dianestjohn @marcye14 and others.

I'm sorry to hear this stroke was traumatic. Strokes can be life-altering. That is true. Glad to hear yours was mild.

How is the hand recovery going? How is your emotional state?

REPLY
Profile picture for Lisa Lucier, Moderator @lisalucier

@devoted1 - I wanted to let you know I moved your post here where others were talking about ischemic stroke. Hoping they can let you know if they or a loved one is going through the same thing recovering from this and provide encouragement. Please meet @grrranny @g1315 @dianestjohn @marcye14 and others.

I'm sorry to hear this stroke was traumatic. Strokes can be life-altering. That is true. Glad to hear yours was mild.

How is the hand recovery going? How is your emotional state?

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@lisalucier
Thankyou for your thoughtfully help. You are appreciated.
A tad embarrassed. I was usually the one routing people on into a positive state. So, I've gently removed myself from the site lately. I will say, however, I find I get so much more than I give.
Hand has healed. But, every now and then, I find the physical scars heal so much easier than the emotional scars attached to them. This is life. I find moving forward, away from past trauma is the answer for me. Just get my feet stuck in the mud every now and then. ☺️. Thankyou again just for plum caring. Diane

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Profile picture for Lisa Lucier, Moderator @lisalucier

@devoted1 - I wanted to let you know I moved your post here where others were talking about ischemic stroke. Hoping they can let you know if they or a loved one is going through the same thing recovering from this and provide encouragement. Please meet @grrranny @g1315 @dianestjohn @marcye14 and others.

I'm sorry to hear this stroke was traumatic. Strokes can be life-altering. That is true. Glad to hear yours was mild.

How is the hand recovery going? How is your emotional state?

Jump to this post

@lisalucier
I still have some issues with my right hand. Holding anything can sometimes become challenging; especially a pen to write my name, but it gradually improving. My emotional state is so much better. Not crying at the drop of a hat anymore! Glad to be somewhat over the hump in my life. Still progressing with God's help.

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