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Living with lung cancer - Introduce yourself & come say hi
Lung Cancer | Last Active: Sep 25 12:58pm | Replies (1044)Comment receiving replies
It's been awhile! Thank you Colleen for moderating and Linda for participating as an amazing survivor of NSCLC!
My wife continues with her treatment of the trial doublet herceptin/perjeta (sponsored by Genetech); which was recommended by Mayo for her unusual stage IV lung cancer with the HERR2 mutation. She has now had 4 infusions and just today had a scan and echo gram to check her progress before continuing with her treatment next week.
As you know, her non small cell lung cancer was diagnosed in April, 2015 and she underwent a VATS bi-lobectimy of her right lung Mother's Day that year. After having previously had Cisplatin chemo and nine rounds of Opdivo, she now amazingly tolerates the new doublet well.
We pray for good reports next week.
If there is one thing we have learned from all this, it's that we now live "one day at a time"! Not planning too far out, we have booked a cruise in May with the hopes that she can tolerate being spoiled for two weeks before returning for more infusions!
God bless all the cancer patients/survivors, and God bless the good people at Mayo- Rochesrer and Mayo-Jacksonville. And God bless our local oncologist and staff here in South Carolina for ther very professional on-going care.
Replies to "It's been awhile! Thank you Colleen for moderating and Linda for participating as an amazing survivor..."
@llwortman,
Hi Linda. I could not find this article that you just recommended to read. Many
sites came up with the same title, so I do not know if it is the same article.
They weren't on trusted sites. I looked it up on the Mayo Clinic site. This is
what they had to say about it. Said that it is extremely rare that the lungs
make these Megakaryocytes blood cells. They have only been detected posthumously
from autopsy. They are the kind of cells that cause cancers in the blood and
tumors. My guess is that it is the bodie's way of trying to compensate for the
bone marrow not doing all that it should. It is interesting that the lungs can
do something other than gas exchange. Who knows, in the future, they may be able
to tweak the genes and have the lungs produce some good blood cells. Mind you,
my take on this may be off, but it is how my little brain interpreted it.
@llwortman Thank
you for turning me onto Looney and his research team. They have LOTS of
published articles on the UCSF site about lung research that looks very
interesting. (UCSF, for those that don't know, is the University of California
San Francisco. They are number one in lung transplant survivals)
Here is the article to which Linda refers.
An Unexpected New Lung Function Has Been Found - They Make Blood https://www.sciencealert.com/an-unexpected-new-lung-function-has-been-discovered-and-it-could-disrupt-decades-of-scientific-thought
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I was just emailed an amazing articles about lungs "An Unexpected New Lung Function Has Been Found - They Make Blood "NATURE just published the research by Looney and his team. This is an absolute "Must Read"
An Unexpected New Lung Function Has Been Found - They Make Blood https://www.sciencealert.com/an-unexpected-new-lung-function-has-been-discovered-and-it-could-disrupt-decades-of-scientific-thought