We watched the video and found it quite informative. Thank you for all of your hard work!
We live in a retirement community in South Carolina and have lost numerous neighbors to lung cancer. Would you consider visiting and putting on your same or similar talk for our community?

Thanks Colleen
We have found the report on our chart on the web and are excited to know she is much improved!
The tumor has shrunk, etc.
Here our discussion items for the doctor tomorrow:

The report is encouraging, and we are cautiously optimistic. We do have the following concerns to discuss with you tomorrow:

- Where is the tumor/s located currently?
- Are there new tumors or new changes?
- Restaging - Am I still considered Stage IV?
- Have you ever gotten a lung cancer patient to "remission"??
- "Benign flow related enhancement in right lobe of the liver"? Does this need further study?
- How long can I stay on the infusions?
- Should I now consider a port?
- Would you please send an update with the latest scans to dr Menefee at Mayo?
- Any suggestions about exercise?
- Heart monitoring since that is one of the supposed side effects of the herceptin/perjeta doublet. How close must we be monitoring it and methodology?

Colleen:
Thank you for posting this information. Additional app Improvements along with breathing games will be launched soon!
Hopefully we can encourage people to take time out by learning how breath deep! It has helped me sleep all night, walk & run, and climb higher. It just takes practice and time.
Hugs
Linda

Dear burrkay:Thank you oir your kind words. I hear about lung tragedy too often. My journey with lung cancer has taught me that researchers everywhere...even at Mayo Clinic researchers desperately need research funding, to find the best ways to properly diagnose and properly treat lung cancer .My life's passion is to introduce people of all ages to their Lungs with more fun facts as well as lung health and cancer facts. I have seen amazing growth in research and treatment since my 2008 surgery, but mute needs to be done, would you agree?I would enjoy meeting you and talking with you more about possibly speaking in your community. What do you have in mind?Thanks so muchHugs for caringLinda 

Burrkay:You will both be in my thoughts !All my bestLinda 

That's a superb list of questions for the oncologist tomorrow @burrkay. I cant think of anything to add except perhaps: what are the next steps?
I look forward to hearing how the appointment goes.

Hi Linda-
Frankly I'm not sure what I have in mind, other than to raise awareness levels in our community. Too many times do we experience discovery of a newly diagnosed lung cancer victim who is stage 4 with no hope other than chemo. Too many times we hear of a newly diagnosed stage 4 lung cancer victim, who had been seeing her local doctor who was treating her for pneumonias, or undetermined pulmonary conditions.
Our community is an active retirement community with approximately 2500 folks, two golf courses, a beautiful lake, hiking trails, etc. Truely, the closest thing to paradise that we have found. Yet, tragedy strikes way too often with folks in their sixties and seventies all of a sudden scucomming to lung cancer!
Maybe we need to broaden the discussion to pulmonary disorders including lung cancer...don't know.
Maybe we need to enlist my wife's local oncologist or possibly a Mayo representative...don't know.
Suggestions?

My husband and I commend you both! You have obviously done your home work. We would be willing to fly (in our DL passes) to speak to your community.
My passion is to raise awareness about lung cancer, lung health and pulmonary research so Lungs & Lives can be saved.
We are hopefully starting a Longatudinal Healthy Lungs rRsearch Study in with Mayo Clinic Dr Bruce Johnson & The Healthy Human Research Lab.
One thing this lung cancer journey has taught me is researchers desperately need research funds. This is why my husband Jerry and I co-founded WortmanLungCancerFoundation.com & Running Lungs Walk/Run events two years ago. We are a non profit and have raised $25,000.00 for Mayo Clinic lung research & researchers.
Your thoughts?
Thank you for caring about others and sharing the needs of your community.
Kindest regards,
Linda

<br><br><br><br><br>Will look forward to seeing the exercises. 'Bronchiecstasis News Today' has <br>some great breathing exercise videos as well. They were diff from any I had seen <br>before. I saved them to a file.<br> <br><br>

<br><br><br><br><br>Hi Linda! I watched your video. Thank you for taking the time to do that. <br>It was very inspiring. Also, I thought you were beautiful. You look fabulous! <br>hugs - Terri M.<br> <br><br>