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Living with lung cancer - Introduce yourself & come say hi

Lung Cancer | Last Active: Sep 25 12:58pm | Replies (1044)

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@colleenyoung

Hi @llwortman @burrkay @alicantina1 @merilee @alvinw @shortshot80 @mryzuch @amws @pearlgee @cheris @annette1 @cheris @windwalker @lesbatts @major @bestcare and @sistergoldenhair

I'd like to invite you to the new group dedicated to discussions about lung cancer. It's a space where we can ask questions, share tips and learn from each other. Whether you in treatment or caring for someone with lung cancer, or you're a lung cancer survivor, please join us.

Pull up a chair and tell us a bit about yourself.

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Replies to "Hi @llwortman @burrkay @alicantina1 @merilee @alvinw @shortshot80 @mryzuch @amws @pearlgee @cheris @annette1 @cheris @windwalker @lesbatts @major..."

Hi, My name is OlgaMarie. I have small cell lung caner, COPD and emphysema. And I can not stop crying lately. I am not afraid of the cancer, but of the emphysema. I put on a happy mask, but at home, I am upset. My life has been challenged with PTSD, caring for a son with schizophrenia ( doing really well now), an alcoholic son and a mother with alzheimers. I did those things for almost eight years and wanted to start to live again. Then cancer. I should not complain, but I am so mad. I finally wanted to find someone to love me and this. I am 73 and I tried, but now feel shattered. I know this is pathetic when so many people are more sick than I. I just want to be serene. I started to eat healthy (than the holidays) go to the YMCA three times a week. What should I do? Thank you so, so much for being here.

Will introduce myself. I am a senior woman who has recently been diagnosed with a cancerous nodule in my lower right lung. Am schedule for a VATS lobectomy on 3/6/19. Doctors don't think I'll need chemo, or radiation since the nodule is less than one centimeter and a needle biopsy did not indicate spread to lymph nodes
. Anyway, for that I"m grateful, but find myself bouncing from one emotion to another--times of fear, anxiety, relief that the thing was found so soon, etc. I guess that is normal. Am with a great medical team in my city and trust them. I am really interested in what people have experienced with eh VATS surgery--after the procedure during the hospital stay, recovery at home, and then handling the needed CT scans, PET scans, or whatever to make sure the patient is free of cancer. Don't know what else to say, but I appreciate any and all comments. So glad to have found you.

One year history non small cell lung cancer stage 4. Thoracotomy one lung and VATS other lung. Thymus glad removed. Now spine and hip bone positive for cancer. Chemo and radiation not give positive results. Currently start immunotherapy keytruda. Seeking information now of personal experiences using cbd/thc for pain relief/cancer. Oncologist has no opinion as no scientific study to confirm cbd/thc and will not give prescription for medical purchase. All is legal here with prescription but many doctors too sceptical to prescribe. Appreciate any information based on personal experience. Thanks.

Glad for this group. Saw my PCP today post surgery--adenocarcinoma in right lower lung. Physical healing is coming along well according to her and according to how I"m feeling more the 50% of the time. Anyway, I have a copy of the path report from the surgery-the cancer is gone. However, path report shows the surgeon also found and removed a 3mm cancinoid turmorlet. Both lesions did not include other tissue, or lymph nodes. According to my doctor, these turmorlietbs can either occurring the lung itself, or originate in the intestinal area. Anyway, I will be under the observation and working my my oncologist. Has anyone else had one fo these tumorlets? Does anyone know more about them? There seems general, but not specific information about such things. At least the thing is also out of my lung. Thank you anyone for information about this finding.

I had surgery in November 2017 for Stage 1B non small cell lung cancer. I recovered very well from the surgery but wonder if my lung capacity will ever become “normal” again.

Hey new here, but been reading a lot of the post that arre here. Im an 80 year old wih lung cancer. Kinda funny how it has all come about. Last Feb, I fell on Ice and hurt my shoulder. I had let it go forawhile until I finally went to the Doctor to have it checked. They most certainly knew that I had rotator cuff. But, an MRI was ordered. Turns out no Rotator cuff, but rather a tumor Went to a local radiation oncologist and then from there I went to Mayo. What A GREAT experience that was. At any rate, I just started Immune therapy once every three weeks. After my first treatment, there seems to be no side affects. Dont know how long that wll last.Right now I feel very good.
Thanks for you forum
Merle

Hi Colleen. Diagnosed with a 3.2 CM adenocarcinoma of the right lung. MRI also shows a 9mm nodule on the brain. PET scan show vertebra L8 cancerous, left rib is cancerous, esophagus has cancer, and nasal cavity as well. I’m in MT and tried to sign up for a Mayo appointment but haven’t heard back from them. Not hopeful anyone can stop this freight train given the spread. But, let’s see. Thanks

Hi,
I have stage 1 lung cancer, lobectomy of lower left lobe in March. Had pluerul effusion and pneumonia following surgery and a chest tube for two weeks. Other than that have recovered well but can't help thinking about the possibility of recurrence. The thought of recurrence to liver, brain or bones is frightening. I am 62 years old and feel fortunate that it was caught early however everything I read points to 30% recurrence rate. Any of you 5 year survivors without recurrence. I wish everyone the very best with their own situations.

Have a couple small spots. First colon cancer that surgeon in Owatonna thought was all removed. Three years later surgeon in Rochester removed 6.0 2.5 cm tumor in right front lobe. With chemo everything mostly stable. Also radiation in brain.

I was diagnosed with stage IV lung cancer in October. I never smoked but found out mine is caused by a gene mutation (EFGR). I had to have a tumor removed from the brain and then 3 targeted radiation treatments. . I am now taking Tagrisso. I’m trying to stay positive. Anyone else with a similar diagnosis?