Atrial fibrillation

Posted by Used to be carefree @usedtobecarefree, May 13, 2012

Hi Everybody,
I've just been diagnosed with A-Fib. I had my first episode of palpitations about 6 weeks ago, and my second one was about 2 weeks ago. Both of them lasted about 6 hours and just went away by themselves. I had hoped it was no big deal, but apparently it means I've got a "condition" rather than simply having had an "event" or two. Anyway, it looks like this all means that I'm going to continue having these events, I'm going to need more medications including warfarin, and eventually I'll have a stroke and die.

Is this consistent with your experiences (except for the last thing, of course)? I'm a 57-yr old male, in otherwise good health. I'm now on a low dose of a beta blocker, I've stopped all caffeine, and I've greatly reduced salt and alcohol (now at 2 beers/day). Any advice or experiences you can share would be greatly appreciated.

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

Profile picture for debmonroe @debmonroe

I have afib, was diagnosed about 3 years ago. Went through ablation about 2 years ago which seem to work beautifully until spring of 2025, when I started having bouts of rapid heart rate that would not stop for 5-6 hours, sending me to the ER a couple of times, once resulting in cardioversion. Since then afib has been managed by adding Flecaidine to to Metoprolol and Eliquis regime. So far so good, even though I do have some atrial flutter now and last 3 day at home monitor showed I was in atrial flutter for the entire time??? Going to repeat monitor in 2 months. Generally, I feel like my afib symptoms are controlled by med regime, having sleep apnea diagnosed and treated, and stopping all alcohol. My biggest complaint is that Metoprolol hampers my exercise routine and daily activities due to weakness and heaviness in my legs. When I asked my cardiologist (more than once) and describe my experience, he says that leg weakness and heaviness is not a common side effect of Metoprolol, but when I look it up that is the first thing that pops up. Can anyone add clarity to this? He wants to ultrasound my legs to look for circulation issues, I am ok with this but am very doubtful that he will find anything. I am in really good shape for a 73 year old, and exercise (walking, weights, core program) everyday.

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@debmonroe it’s definitely the medication don’t let them tell you otherwise

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Profile picture for carly14 @carly14

@debmonroe it’s definitely the medication don’t let them tell you otherwise

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@carly14 Right?? I am completely flummoxed! My cardiologist keeps saying it is not a side effect of Metoprolol.

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Profile picture for rimord @rimord

@debmonroe I should have quantified that the Metoprolol had made me terribly depressed. Now, it doesn't bother me. If it affects you that way, remember it's the medicine!

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@rimord Interesting, i have definitely struggled with low/flat mood and lack of energy. I force myself to be engaged in life most of the time. I never thought about this being a side effect, but that also makes sense!

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Profile picture for debmonroe @debmonroe

I have afib, was diagnosed about 3 years ago. Went through ablation about 2 years ago which seem to work beautifully until spring of 2025, when I started having bouts of rapid heart rate that would not stop for 5-6 hours, sending me to the ER a couple of times, once resulting in cardioversion. Since then afib has been managed by adding Flecaidine to to Metoprolol and Eliquis regime. So far so good, even though I do have some atrial flutter now and last 3 day at home monitor showed I was in atrial flutter for the entire time??? Going to repeat monitor in 2 months. Generally, I feel like my afib symptoms are controlled by med regime, having sleep apnea diagnosed and treated, and stopping all alcohol. My biggest complaint is that Metoprolol hampers my exercise routine and daily activities due to weakness and heaviness in my legs. When I asked my cardiologist (more than once) and describe my experience, he says that leg weakness and heaviness is not a common side effect of Metoprolol, but when I look it up that is the first thing that pops up. Can anyone add clarity to this? He wants to ultrasound my legs to look for circulation issues, I am ok with this but am very doubtful that he will find anything. I am in really good shape for a 73 year old, and exercise (walking, weights, core program) everyday.

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@debmonroe My experience with flecinide was not good. If you've looked at what it can do to you, you may want to consider an alternative.

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Profile picture for mache2024 @mache2024

@debmonroe My experience with flecinide was not good. If you've looked at what it can do to you, you may want to consider an alternative.

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@mache2024 can you say more? I’ve looked at side effects and they seem about the same as with all the other meds I’ve been prescribed for afib. I do find it curious that it can actually cause heart arrhythmias, like convert afib to flutter etc.

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Profile picture for debmonroe @debmonroe

@mache2024 can you say more? I’ve looked at side effects and they seem about the same as with all the other meds I’ve been prescribed for afib. I do find it curious that it can actually cause heart arrhythmias, like convert afib to flutter etc.

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@debmonroe The drugs like Flecainide and amiodarone weren't developed for AFIB. From what I have found, they are designed to help control ventricular fibrillation of the heart. These drugs are called off-label for AFIB. The biggest side effects are that they can harm your kidneys, lungs, and liver.

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Profile picture for mache2024 @mache2024

@debmonroe The drugs like Flecainide and amiodarone weren't developed for AFIB. From what I have found, they are designed to help control ventricular fibrillation of the heart. These drugs are called off-label for AFIB. The biggest side effects are that they can harm your kidneys, lungs, and liver.

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@mache2024 thanks very much. I certainly don’t feel like it is helping. Looking into getting off of it.

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Profile picture for debmonroe @debmonroe

@mache2024 thanks very much. I certainly don’t feel like it is helping. Looking into getting off of it.

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@debmonroe I was on amiodarone for a short while. I forget if it was before or after my ablation. I remember the cardiologist saying how it was bad for everything except the heart!

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At my first episode of AFib, I was put on 400 mg of amiodarone twice a day. Although my AFib continued, the amiodarone caused severe lung toxicity (my pulmonologist called it a "poison pill") and bradycardia. After having 3 months of heartrate in the 30's and passing out, I had a pacemaker implanted. If you are on amiodarone, I highly recommend that you make certain your doctor follows up with testing to confirm that organs are not being harmed. Whenever I complained about being short of breath, I was told it was due to AFib.

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Profile picture for rimord @rimord

@debmonroe I was on amiodarone for a short while. I forget if it was before or after my ablation. I remember the cardiologist saying how it was bad for everything except the heart!

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@rimord thank you for your response. Amiodarone is not a med that has been recommended for me. I stopped taking Flecainide as of Monday evening and hoping to not have to replace it with anything. That leaves me taking Metoprolol and Eliquis only. So far so good!! Fingers crossed 🤞🏻

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