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Heart transplant: recovering but steroids are affecting behavior
Transplants | Last Active: Dec 21, 2020 | Replies (91)Comment receiving replies
@lupedelarosa12, Welcome to Connect. I am a liver/kidney transplant recipient. I encourage you to talk to his transplant coordinator or transplant team about this. They are the only ones who have the knowledge to answer your question. It is okay to call them, even if it is between appointments.
If you feel this is urgent and needs to be addressed tonight, you should call his doctor's office and see who is on call to help you with this.
I'll be back online tomorrow.
Rosemary
Replies to "@lupedelarosa12, Welcome to Connect. I am a liver/kidney transplant recipient. I encourage you to talk to..."
@fatherscaregiver , Sorry for the late reply i have had alot of health issues going on plus live in Florida so had hurricane Irma. I had heart transplant in 2015. I can tell you the steroids definitely impacted me,try not to take it to heart. I would lash out at my mom who was my main caregiver after surgery we know its wrong but hard to control with steroids. Definitely need to have boundaries though that helps put us back in check 🙂
It should get better as steroid dose gets reduced.
I am surprised he has nit been doing theapy already, i started immediately. I had alot of GI issues if he is on Cellcept you may want to see if he can be switched to myfortic. Samr drug but one is long acting. It made a huge difference for me. Any questions feel free to contact me
Amy
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@fatherscaregiver, Thank you for the update! This is wonderful news on a Monday morning!! I feel sure that you are experiencing a tremendous relief, too!
There is no way to measure how quickly one will completely recover. We are all unique and it can get frustrating for both caregiver and recipient.
You made a good decision to seek out the expertise of the transplant team. This is a perfect example of how the post transplant team works - they will continue to work together and coordinate your dad's care. It is not unusual to experience depression after transplant, along with other things. The best advice that I will offer is "Go to the team": do not do it alone. At 8 year post transplant, I still practice this, just don't need to do it as often.
I hope the GI issues start to settle. I anticipate that when he starts eating regularly, that he will begin to feel better.Those meds are vital, but they do play havoc on our systems. Most of the time it is a controllable situation that the doctor will address.
What kind of follow-up have they scheduled?
Hug to you, and hug to your dad.
Rosemary