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Profile picture for lisaz @lisaz

@sueleerocks I hope you’ll see this. I know you’re a stranger, but I care and I’ll listen because I live it. My Dr told me for years that the Interferon/Ribaviron treatment had nothing to do with all of my symptoms. I didn’t believe him, but what could I do? He was a good dr and tried a lot of things to help me. Tested me for many different things. Diagnosed me with Fibromyalgia, Chronic Fatigue, Rheumatoid, depression and more. Fast forward many years. PIS is now a known issue. He tells me this is the problem. But get this- he doesn’t remember ME telling HIM this years ago. Now he is retired and not a single health care professional that I deal with knows about PIS. Luckily my current drs are willing to listen and did a little research to at least understand what I am talking about. I’m more than happy to talk to anybody who deals with this a little more privately (if that is even an option on here?) As you all probably know, this is so long and involved. I also don’t want to give medical advice, just share what I personally have done.

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@lisaz
Thank you, I am 70 now and very angry about what happened to my body in 2007, those drugs literally ruined my life. I cleared the virus in one month. When they saw what the drugs were doing to my bone marrow, they should have halved the dose. But we’re you aware doctors were receiving as high as six figures for every prescription written?!!!!!! If you run into an unscrupulous doctor like I did, you got screwed. I had my bone density checked just a few years before treatment and the doctor stated, “I don’t know what you’ve been doing, but you have the bones of a 20 year old!” Few years later on interferon I go from being 5’11” to 5’7”, my eyesight has deteriorated so much and I am afraid I might go blind. I have Sjogren’s from treatment and numerous issues. Thank you again for your response. I am angry as all hell!