Is there a moderator?

Thank you I agree. A lot of misinformation about PCa out there our group excluded. It’s not always slow moving and only hits men over 85.

Just use medical forums as one of the tools in the bag. There is a lot of knowledge to learn hearing other peoples experiences. Try and find the best doctors for what ever type of cancer you have. If you can afford it travel to see a top doc in that field if none in your area (teaching hospitals usually the best) Get 2nd & 3rd opinions. When you are dealing with your life an online forum shouldn't be the place to make treatment decisions. Those personal decisions are for you, loved ones and doctor to make. Knowledge is power!

I think it is important for people with different experiences to share their thoughts even if they seem overly aggressive at times (I hope that's not me). I believe that these days doctors are the main source of information with a patient but patients who come here are looking for more detail and answers to questions that one or more doctors do not always have time to answer or they are seeing n unintentional bias. They are here to get some hope that there is a reasonable way through cancer.

For me, when I have seen an answer to a posted question, I might hope that it is correct but will always check it out in other ways...other doctors opinions, ai, friends/acquaintances with similar experiences, videos from reliable sources... I try to stay away from whatever the motive may be, which for the most part I like to think is for helpful reasons, and drill down into those other sources whenever possible. In this world, how many people do we all trust explicitly as always having our best interest at heart. For me its a smaller number versus larger so I tend to question answers and sources but have found many valuable comments on this site.

Maybe Mayo Connect should add another "click image" to the Like, Helpful and Hug such as "Not sure if that's accurate"

There is a reason why forums do not have down buttons :-). There is also a natural tendency for people with strong, divergent voices to post on forums. I have appreciated this forum because of the insights I have gained that have complemented my medical resources, which are apparently, at least reputationally, far more questionable than many who post here. However, I am used to harsh environments in various ways, and do not assume that everyone who posts will be a tender, gentle soul. Some in fact seem to have acerbic senses of humor or even bitterness about what they have suffered, and that does not seem to me shocking or surprising.
This is also a male disease, and historically males have frequently had a bit more rough and tumble interaction with each other that sometimes has involved competition in the most uncompetitive environments and exaggeration (at the very least.) Perhaps we need to remember that not all participants are male and not all males like to interact that way.
I think it is absolutely fine to long for civility and kindness here, for we all need that, but also fine to allow a variety of unfiltered voices even if they may not always agree or even speak the truth in love. That's just my opinion and I am not a moderator in any way. I do hope I am a calming influence from time to time....

This forum is for people with prostate cancer or their caregivers. When you have cancer, people love to give you advice like “sugar feeds cancer, so stop sugar and your cancer will go away” or “don’t worry, most people die with prostate cancer, not of it” etc. These are not based on facts or are facts out of context. I think the advice on this forum should be considered food further research or something to talk to your doctor about. Since we and our cancers are all unique, advice from a non-oncologist who hasn’t examined you is maybe good general information, but cannot be a substitute for medical advice, even if the writer is a doctor. Do what your oncologist tells you to do. If you don’t trust him/her, find one you do trust. Generalized advice and research can help you know what to ask your oncologist.

@bens1 I think your exactly right. I like all the comments. I appreciate everyone's input. But as you say, it inspires me to go dig deeper. I also make a list of all my concerns and questions and take that to my Dr visit. I am not holding anyone accountable on this site. I just like the straight up responses. My wife's cancer Facebook page wanted positive information only. I didn't find anyone coming on the site with a wish to degrade anyone. But it was all feel good stuff. Someone would come on and ask how everyone slept. ?? I think an extra button like "not helpful" might flag those for the moderator to review.

I don’t go on this site for expert advice, for that I talk with my Doctor. I go on this site to hear others experiences and what has helped them.

It actually is probably better for everyone if you see a post that violates the guidelines just to click on the three dots at the bottom right and report the post to a moderator.

@tuckerp Funny how you mention the GBM site, with only positive comments allowed.
My friend’s son had GBM and was being treated in Houston (not MD Anderson, but the ‘other’ cancer hospital whose name escapes me) by an Asian doctor with a very heavy accent. He was a very clinical type, never joked and rarely smiled.
When my friend’s son asked him what the next steps would be after radiation, he looked at him and said ‘You be dead in 14 months no matter what you do’…
The kid was stunned but immediately went to the chief of radiology and fired the doctor over the comment. He was quickly reassigned another clinician.
Don’t know what happened to the first doc, but c’mon man, give your patients HOPE at the very least!! Perhaps some comments on the forum come off that way to some individuals - a hard truth they simply cannot accept?? My friend’s son certainly couldn’t accept it and he fought like hell; he lasted 18 months - 4 months more than predicted.
Don’t know if this was a pyrrhic victory for him because those 4 extra months were the absolute worst…
Phil

Let us all remember that original complaint was not about information shared , or advise given but about the "tone" in which it was delivered.

I personally would have been mortified if I got reply like that, it was tactless and cruel - period. I understand that PC cancer as any other cancer is a devastating diagnosis to both the sufferer and the family and that people deal with pain in different ways but being snappy and judgmental is just not an option, and especially not toward fellow sufferer !

I also understand that certain medications can effect brain and mood and I always take that in consideration when I sense impatience and/or terse attitude but there is a very clear line between being terse and being insulting.

At the end - I want to give a prospective of a caregiver to all members here, it is equally taxing as if having a cancer especially if a caregiver is loving that patient more than themselves. I can not even try to explain what it means to juggle both sets of emotions ( mine and his) and problems and navigating and balancing care, and tryung to find some solace in this utter chaos. Caregiver has to be master coordinator, master cheerleader, master therapist and there is never a moment of rest or time to deal with his/her own needs or emotions - period. Add to that a feeling of not being "good enough" in doing all of that and you can see how devastating some of those comments were.

Please lets just be considerate and decent toward each other 🙏, and all problems like those will be solved.
🤗💗🕊️☮️