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← Return to Diagnosed with Polycythemia Vera in August. I was given Hdroxyurea
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Diagnosed with Polycythemia Vera in August. I was given Hdroxyurea
Blood Cancers & Disorders | Last Active: Sep 29 3:42pm | Replies (20)Comment receiving replies
@pineyb Welcome to Connect! Thank you for sharing your experiences and the advice for how you’re coping with PV. Looks like your PCP missed the boat on potentially diagnosing this much earlier. Glad to see it’s under control now, you’re active and enjoying life! It was interesting how the excess iron from supplements was interfering with the hydroxyurea. Good catch!
Are you still taking the 500mg of HU daily?
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@loribmt Thanks!
I’m alternating between 1000 mg and 500 mg daily. My oncologist and I are fiddling around with trying to find the exact right dosage to keep my hematocrit low enough and to keep my energy high enough.