1. < Headache & Migraine
Profile picture for roseann4z

Just started Qulipta-any experiences to share?

Posted by roseann4z @roseann4z, Apr 29 3:56pm

I have been feeling pretty awful with migraine, cervicogenic headaches and fatigue from those issues & breast cancer drugs. Was taking Nurtec with not great results but now been switched to Qulipta. I hate adding another daily drug to my already beat-up body (I am 71) Also this is all making me anxious & they want to give me another pill for that! Looking for some advice as to how to fight the fatigue and other side effects & wondering if the drugs are worth it. So far I’m not any better. On day 5 of 30 mg Qulipta. On Nebebolol beta blocker, Ibrance & Exemestane for cancer & a blood thinner. Thanks for any thoughts.

Interested in more discussions like this? Go to the Headache & Migraine Support Group.

Profile picture for mikayla
mikayla | @mikaylar | Sep 9 8:04am
In reply to @0benice "I contacted the FDA and Mayo Clinic. I’m telling you this is a bad medicine. It..." + (show)
Profile picture for 0benice @0benice

I contacted the FDA and Mayo Clinic. I’m telling you this is a bad medicine. It worked for the first two months, but I was covered in hives where my doctor told me to take Benadryl and constipation was unbelievably awful along with the hives and then this major teeth sensitivity. It takes six months for it to stop, but since then I’m extracting teeth the dentist is like the nerve endings have gone crazy and I’m getting root canals and extracting teeth I’ve never undergone such an issue in my life. It’s a bad bad drug not to mention. It’s ridiculously priced $2600. They’re out of their minds. I suggest everybody with migraines getting off of it and demanding Botox and have the Botox put over the optical nerves in your forehead on the bone between your eyebrows and on the crown of your head I went 6 1/2 years with what felt like my brain was on fire and putting the Botox on the crown of my head is what’s done the trick Good luck to your migraine suffers

Jump to this post

Botox near your eyes = it's botulism!

REPLY
Profile picture for 0benice
0benice | @0benice | Sep 22 9:42pm

Just had another molar extracted and now an eye on the upper right hand side is causing problems and I think tomorrow morning we’re extracting that one. I’m losing all of my teeth. I’m telling you the pain from the qulipta was ungodly every tooth in my head just charted to have major nerve pain. I’m begging people out there do not take this. I am losing all of my teeth because of this medication, please for the love of God if you want to keep your teeth do not take this medication

REPLY
1 reply
Profile picture for Jody aka mojo244
Jody aka mojo244 | @mojo244 | Sep 24 8:06am
In reply to @0benice "Just had another molar extracted and now an eye on the upper right hand side is..." + (show)
Profile picture for 0benice @0benice

Just had another molar extracted and now an eye on the upper right hand side is causing problems and I think tomorrow morning we’re extracting that one. I’m losing all of my teeth. I’m telling you the pain from the qulipta was ungodly every tooth in my head just charted to have major nerve pain. I’m begging people out there do not take this. I am losing all of my teeth because of this medication, please for the love of God if you want to keep your teeth do not take this medication

Jump to this post

Obenice, I’m so sorry you’re going thru teeth extractions.
I was prescribed Qulipta but the copayment was $400.00 so I refused to take it.
Are they sure the Qulipta caused the tooth damage?
If you went through radiation treatments that would more likely be the cause.
I use a prescription toothpaste along with Sensodyne toothpaste 3-4 X per day. I also see my dentist twice a year and get fluoride treatments each visit. My insurance covers one fluoride per year and I pay $45.00 for the second one.
My wisdom teeth and a few questionable molars were extracted prior to starting chemo and radiation treatments. I have had a couple teeth chipped and repaired but so far my teeth are hanging in there and I’m nearing my 9 year post stage IV treatment.
Wishing you well
Jody

REPLY
Profile picture for 0benice
0benice | @0benice | Oct 6 9:16pm

Everybody thank you for your responses no, I’ve never had radiation. I am an avid person to do my dental cleanings and my flossing. I’ve taken care of my teeth my entire life two months after being put on Q live I had hives all over my body. they were oblong bright red lifted off the skin at least an inch long. My doctor caught me from 60 mg to 30 mg and told me to take Benadryl and continued me on this medicine for another four months during that four months my teeth started hurting something awful. I made the sensitivity was throughout every tooth in my mouth. I finally just said Doc I’m not taking it. I have to go off. I can’t even eat now. It was definitely from the qulipta but of course you know big Pharma they’re never gonna take responsibility I am just so grateful that we have a forum where we can speak to each other and warn each other or support each other. And not to mention $2600 for 30 pills who in their right mind can pay for that money on a regular income. This pharmaceutical company is nuts to think that anybody can pay that amount. But we had to do what we had to do when you’ve got brain inflammation and constant migraines. I finally told my Doctor Who is doing the Botox and the nerve blocks. Hey, let’s just do the Botox, but can we put it directly on my forehead over the optical nerves, and then in the crown of my head and it works fantastic. Doing it this way no more nerve blocks no more oral tablets just for Botox right over the two receptacle nerves in the center of my forehead and the crown of my head so if anyone has migraines like I do, I wish you the best of luck doing it this way God bless you all

REPLY
View MoreView Less
Please sign in or register to post a reply.