Awful fatigue, shortness of breath, brain fog..anything helping you?

Dear Taunya6543,
Welcome to the unsolved world of Long Covid. I have exactly the same symptoms....EVERYTHING you are experiencing duplicates my situation. Got Covid in 2020 at a very active age seventy. Have found no one who has better suggestions or information than this Mayo site. Although no cure has been found, the site provides information that local doctors often do not know, it provides support that non-LC survivors don't always give to us, and it has allowed me to be "ok" with whatever I can accomplish in a day...and sometimes that is very little. I continue to believe that the next day will spur more activity, BUT do NOT beat myself up if that does not occur. Even close family members try but are unable to fully understand our situation because we do not always completely understand it ourselves. I attempt to take the advice of my wonderful P.C....."be prepared to live with this for the rest of your life." Disheartening?...yes. Disappointing?...yes. Demoralizing?...yes. Unexplainable?...yes. BUT...her words become more important as time passes because no matter what another person experiences or believes , WE must believe that we are doing our best under horrendous circumstances, and what WE think is all that matters. Sounds harsh, but who else walks in our shoes? Before finding this site, I duplicated all you expressed. Now I know there are others like me, others who are surviving, others who would NEVER judge me, others who understand, others who are suffering similar (or worse) aspects of this terrible situation and others who are more debilitated than I...hard to believe, but true.
Do whatever you can accomplish, feel proud that you make that effort and be as patient with yourself as you are with others. You did not ask for this, you do not deserve negativity from others and please know you are NOT alone. I am your medical twin...aka one in spirit from afar. Most people on this site have some of my symptoms, some have additional symptoms, some are healing, some are not. YOU are the first person who literally duplicates my situation. I am sad for you yet heartened to know you exist and extremely grateful you wrote. You learned much sooner than I what was wrong plus you are much younger. There is more hope for your progress than for mine. I appreciate you from afar to a greater extent than you can imagine. If you are inclined to reveal....may I ask the state you call home? I am in Massachusetts. Whether near or far, NEVER forget that you are very special!!! Perhaps my approaching age eighty carries a bit of wisdom worth remembering. Only YOU can decide.

What a kind comment you gave “ donnie46” . So true regarding everybody on this site so caring and nonjudgmental. You offered “tauna6543” positive words. And I want to also say to you - you may be older but there is certainly hope for you in getting better - perhaps in An unexpected way 🙂 don’t give up!
Karen

Dear Taunya6543,
Welcome to the unsolved world of Long Covid. I have exactly the same symptoms....EVERYTHING you are experiencing duplicates my situation. Got Covid in 2020 at a very active age seventy. Have found no one who has better suggestions or information than this Mayo site. Although no cure has been found, the site provides information that local doctors often do not know, it provides support that non-LC survivors don't always give to us, and it has allowed me to be "ok" with whatever I can accomplish in a day...and sometimes that is very little. I continue to believe that the next day will spur more activity, BUT do NOT beat myself up if that does not occur. Even close family members try but are unable to fully understand our situation because we do not always completely understand it ourselves. I attempt to take the advice of my wonderful P.C....."be prepared to live with this for the rest of your life." Disheartening?...yes. Disappointing?...yes. Demoralizing?...yes. Unexplainable?...yes. BUT...her words become more important as time passes because no matter what another person experiences or believes , WE must believe that we are doing our best under horrendous circumstances, and what WE think is all that matters. Sounds harsh, but who else walks in our shoes? Before finding this site, I duplicated all you expressed. Now I know there are others like me, others who are surviving, others who would NEVER judge me, others who understand, others who are suffering similar (or worse) aspects of this terrible situation and others who are more debilitated than I...hard to believe, but true.
Do whatever you can accomplish, feel proud that you make that effort and be as patient with yourself as you are with others. You did not ask for this, you do not deserve negativity from others and please know you are NOT alone. I am your medical twin...aka one in spirit from afar. Most people on this site have some of my symptoms, some have additional symptoms, some are healing, some are not. YOU are the first person who literally duplicates my situation. I am sad for you yet heartened to know you exist and extremely grateful you wrote. You learned much sooner than I what was wrong plus you are much younger. There is more hope for your progress than for mine. I appreciate you from afar to a greater extent than you can imagine. If you are inclined to reveal....may I ask the state you call home? I am in Massachusetts. Whether near or far, NEVER forget that you are very special!!! Perhaps my approaching age eighty carries a bit of wisdom worth remembering. Only YOU can decide.

Donnie46. Thank you for all your words of wisdom. Finding out what was wrong with me was a great relief..I really thought I maybe dieing...after I found out after months of testing and trying everything , I have finally found some peace and acceptance for myself. My husband has been very supportive and understanding as much as he can be. We just downsizing which was really hard on me. I'm 79 as of 2 days ago and he does not want to do much more traveling except Florida for 6 months to play golf. I find that cold weather makes me hurt more. I love this site but have realized I have alot more things brought on by covid than I knew! I am glad that I am older and can take it easy but the younger people who work have it so much worse. We have our blessings and I am happy now learning and accepting to live with this. I still wake up thinking maybe next month it will be better..it's hard to give up hope....I live in Indiana

Dear Karen8,
YOU are THE sunshine in this, a day of gloom. Living alone, after raising a family, now allows me to just SIT if necessary. I count my blessings to be able to prepare meals and do other basics. Like many of us in this situation, the world sees me smiling while breathlessly exhausted and sad inside because a rare incurable cancer is also present. I focus on my nine year old granddaugther saying that I am "seventy-nine and HOLDING." Alas, it's the "holding" part that is difficult, but no one else knows that.
Hence, one of the incredibly valuable aspects of everyone on this site is having friends near and far wherever they are." THANK YOU, THANK YOU, THANK YOU! Hugs 4-ev-ahhh! Donnie46

Dear Taunya6543,
Welcome to the unsolved world of Long Covid. I have exactly the same symptoms....EVERYTHING you are experiencing duplicates my situation. Got Covid in 2020 at a very active age seventy. Have found no one who has better suggestions or information than this Mayo site. Although no cure has been found, the site provides information that local doctors often do not know, it provides support that non-LC survivors don't always give to us, and it has allowed me to be "ok" with whatever I can accomplish in a day...and sometimes that is very little. I continue to believe that the next day will spur more activity, BUT do NOT beat myself up if that does not occur. Even close family members try but are unable to fully understand our situation because we do not always completely understand it ourselves. I attempt to take the advice of my wonderful P.C....."be prepared to live with this for the rest of your life." Disheartening?...yes. Disappointing?...yes. Demoralizing?...yes. Unexplainable?...yes. BUT...her words become more important as time passes because no matter what another person experiences or believes , WE must believe that we are doing our best under horrendous circumstances, and what WE think is all that matters. Sounds harsh, but who else walks in our shoes? Before finding this site, I duplicated all you expressed. Now I know there are others like me, others who are surviving, others who would NEVER judge me, others who understand, others who are suffering similar (or worse) aspects of this terrible situation and others who are more debilitated than I...hard to believe, but true.
Do whatever you can accomplish, feel proud that you make that effort and be as patient with yourself as you are with others. You did not ask for this, you do not deserve negativity from others and please know you are NOT alone. I am your medical twin...aka one in spirit from afar. Most people on this site have some of my symptoms, some have additional symptoms, some are healing, some are not. YOU are the first person who literally duplicates my situation. I am sad for you yet heartened to know you exist and extremely grateful you wrote. You learned much sooner than I what was wrong plus you are much younger. There is more hope for your progress than for mine. I appreciate you from afar to a greater extent than you can imagine. If you are inclined to reveal....may I ask the state you call home? I am in Massachusetts. Whether near or far, NEVER forget that you are very special!!! Perhaps my approaching age eighty carries a bit of wisdom worth remembering. Only YOU can decide.