← Return to Husband with Parkinson in memory care: We've never been separated

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My husband of 37 years also has PD and related dementia (PD since 2018, dementia since 2021.) We're waiting for a space that will open up at a nearby memory care facility when its current resident moves out, probably in a month or so. I'm already grieving the loss that this is going to create for both of us. I have no idea how I'm going to adjust, but I also know this is the best thing for him. I'm still working full time (we're both 61) and he simply needs more help than I can provide when I'm with him on my own. Knowing the current situation is unsustainable doesn't make me feel any less guilty about handing off his care, of course.

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Replies to "My husband of 37 years also has PD and related dementia (PD since 2018, dementia since..."

I am glad that you found this discussion on Mayo Connect, @pamjsa. I agree with @marcusandgizmo and commend you on the many years of caregiving. Caregiving is a challenging role to play. You obviously love your husband and have done your best, but I can see that you feel the time has come to relinquish the caregiving role so your husband can have the care he needs and you can get some rest.

I would encourage you to join another discussion group on Connect that is specifically for caregivers. Here is the link to those discussions:

https://connect.mayoclinic.org/group/caregivers/ and
https://connect.mayoclinic.org/group/caregivers-dementia/
I look forward to hearing from you again. Will you continue to post and let us support you on this challenging journey?