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Is anyone here taking Revlimid? If so please share with me

Blood Cancers & Disorders | Last Active: Sep 27 9:58am | Replies (65)
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Profile picture for jeffreykassover1 @jeffreykassover1

I have MDS with the 5q variant and another variant as well. Taking Remlivid for the second time... so far, no effect. Transfusions are given about regularly when I am below 7. Told to hang in there, but not seeing any results is frustrating.

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Replies to "I have MDS with the 5q variant and another variant as well. Taking Remlivid for the..."
Chris, Volunteer Mentor | @auntieoakley | Sep 21 9:21am

I don’t know anything about MDS but my hubby (who has multiple myeloma) has taken revlomid at higher doses with dex, which worked a lot faster, than the lower doses he has been on. He has also taken it with Ninlaro and dex, which also worked pretty fast but wasn’t tolerated quite as well.
I am crossing my fingers the higher doses work as well for you. Is there other drugs they use with the revlomid to treat MDS?

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montauk | @montauk | Sep 24 10:19am

On 10 mg Revlimid for 5q for 3 months.

Zero positive effect.

Still require blood transfusions.

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