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I’ve been on Revlimid for 4 months. At first, I was told I would need to take this maintenance drug for the rest of my life. Last month I was told if I stay in remission, I can stop taking Revlimid in 3 years. Has anyone else been told this?

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Replies to "I’ve been on Revlimid for 4 months. At first, I was told I would need to..."

I know the protocols have changed a bit, but my husband took revlomid maintenance after stem cell transplant.he took it for two years. He was part of the original folks who went maintenance to see if it would work. It did keep the myeloma at bay for the entire time. His myeloma stayed undetectable for another year and a half after he quit taking it. Then the myeloma came back and he went back on treatment. These extended treatment breaks really helped him to feel well.
Your doctor may feel because because of your specific disease it would be beneficial to remain on some form of treatment.
Have you discussed this timing with your doctor?

@molly16 Welcome to Mayo Clinic Connect!

As @auntieoakley mentioned, checking with your doctor will be the best bet. We have the same disorder, but there are many variables and nuances. Add in to that, our other health challenges that may accompany that myeloma diagnosis! Our medical teams [and that includes ourselves] are the best source of how to figure things out.

I have been on Revlimid since August 2021. A couple of times we "took a break" for a short time, and right now I am taking Ninlaro [ixazobib] only, with a break from the Revlimid since end of March. At some point we know I will probably go back on the Revlimid, but for now things go along as they go along.
Ginger

Hi, Enjoyed your post. My name is Joyce, I am currently taking Revlimid 10mg. for the last few months along with injections of Aranesp 250 mg. &. Vitamin B-12 every 2 weeks, but still needing blood transfusion on an average of every 4 to 6 weeks....How long has it taken for your remission? Was so happy to hear of your success & hopes for the future. Thanks, Joyce