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Profile picture for mumblipeg @mumblipeg

Thanks for your input. The bone pain, toe/foot pain isn’t in my head, but does go unaddressed when I mention it to my Oncologist. Occasional gout, headaches, and lately earaches also go unaddressed. That’s why I’m pushing for a dose reduction. HU has reduced my platelets, but the side affects are often intolerable. Did I mention hair thinning, weight gain, depression and off balance. These are symptoms I deal with every day.

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Replies to "Thanks for your input. The bone pain, toe/foot pain isn’t in my head, but does go..."

@mumblipeg Did you ever get an answer on the foot/toe pain? I looked back on the responses and didn't see if you were able to follow up with your doc. These specialists are often so backed up on appts and frazzled when you do get in that I'd rather grit and grin until my reg looky loo.