~ Side effects from anti-anxiety meds (Lamictal)~

Posted by Barb @amberpep, Nov 5, 2017

I am sitting here both relieved and thankful. Ever since I had my RTKR and then the revision, it doesn't hurt at all, but my balance is way off. I have to be extremely careful or I will fall, and some of them have been real hurtful ones......like on the garage floor which is concrete and I landed on my back, hitting my head, into the coffee table sending everything there flying, including my water and tea, walking up a slight hill on some grass, and many, many, more times. I haven't said anything to you all because I was terrified it was something awful .... a brain tumor, Parkinsons ....
Well .... I got the Mayo Clinic Guide to Integrative Medicine and in the section on Stress and Mood Disorders, page 177, it talks about anti-anxiety medications. It says "side effects include unsteadiness, drowsiness, reduced muscle coordination, and problems with balance. These medications can also cause memory problems." I cannot tell you how relieved I was .... these side effects are primarily from the anti-anxiety meds.
I know that taking Lamictal, causes my hands to shake, and for that (they call them essential tremors) I have to take a small dose of propanalol, which is a beta blocker.
Anyhow, if any of you folks are experiencing any of this, as I have been, take heart .... it may not be at all what you think.
abby

Interested in more discussions like this? Go to the Depression & Anxiety Support Group.

Profile picture for minajo @minajo

My nonverbal daughter, autism, epilepsy is titrating from 200( after 9 minutes seizure and one after in ambulance) to 300 XR brand name at 25 mg increase every week but seems especially sad, just no interest in doing simple things, like puzzle, wordsearch books.. She is low functioning on autism spectrum but just seems lifelessNo more seizures past week but if Lamictal for bipolar will she just get more depressed as dose goes up?We had a cheery, happy engaged daughter, now not soAlso takes Seroquel and Buspar, has for yearsAfter disaster with Zonisamide we hoped this drug would work .She was on Dilantin for many years but always had to go to lab for levels, adjust the doses..She can't talk but everyone sees the difference but doctors only want seizure control..Thanks to all in this group !

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Has any one taken Lamictal for seizures?
What side effects have you had if any.
My neurologist has put me on 25 mg a day for 14 days then increasing dosage over the next 6 weeks. I took Keppra and wound up min hospital. Couldn’t tolerate it. Reading side effects of Lamictal I am concerned.

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Profile picture for minajo @minajo

My nonverbal daughter, autism, epilepsy is titrating from 200( after 9 minutes seizure and one after in ambulance) to 300 XR brand name at 25 mg increase every week but seems especially sad, just no interest in doing simple things, like puzzle, wordsearch books.. She is low functioning on autism spectrum but just seems lifelessNo more seizures past week but if Lamictal for bipolar will she just get more depressed as dose goes up?We had a cheery, happy engaged daughter, now not soAlso takes Seroquel and Buspar, has for yearsAfter disaster with Zonisamide we hoped this drug would work .She was on Dilantin for many years but always had to go to lab for levels, adjust the doses..She can't talk but everyone sees the difference but doctors only want seizure control..Thanks to all in this group !

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@murphymarg59
I have not taken Lamictal however I've taken plenty of other seizure meds. It's important to understand these are potential side effects. The nocebo effect is where negative expectations about a treatment may lead to or worsen side effects.
The only expectation you should have is that it's going to help your seizures. Don't be concerned or stress about side effects that may never happen.
Take care,
Jake

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Profile picture for Jake @jakedduck1

@murphymarg59
I have not taken Lamictal however I've taken plenty of other seizure meds. It's important to understand these are potential side effects. The nocebo effect is where negative expectations about a treatment may lead to or worsen side effects.
The only expectation you should have is that it's going to help your seizures. Don't be concerned or stress about side effects that may never happen.
Take care,
Jake

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You have made a great point.
Thank you.
Only positive thoughts.
Stay off the internet!!!!!!

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Profile picture for murphymarg59 @murphymarg59

Has any one taken Lamictal for seizures?
What side effects have you had if any.
My neurologist has put me on 25 mg a day for 14 days then increasing dosage over the next 6 weeks. I took Keppra and wound up min hospital. Couldn’t tolerate it. Reading side effects of Lamictal I am concerned.

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Hi @murphymarg59
As I mentioned earlier in this discussion, Lamictal was my first AED and had the fewest side effects for me. I only stopped taking it because of terrible insomnia. But as my doctor always reminds me, everyone responds differently - what doesn't work for one person might be perfect for another.
I completely agree with @jakedduck1's point of view. Reading the medication leaflet can potentially influence us. Based on my husband's suggestion, I've stopped reading the leaflets myself. Instead, if I experience any side effects, I ask him to check the information for me. You might consider asking someone you trust to do the same. That way you can avoid being influenced by all the potential side effects listed, while still having access to the information if needed.
Chris

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Profile picture for Chris Gautier, Volunteer Mentor @santosha

Hi @murphymarg59
As I mentioned earlier in this discussion, Lamictal was my first AED and had the fewest side effects for me. I only stopped taking it because of terrible insomnia. But as my doctor always reminds me, everyone responds differently - what doesn't work for one person might be perfect for another.
I completely agree with @jakedduck1's point of view. Reading the medication leaflet can potentially influence us. Based on my husband's suggestion, I've stopped reading the leaflets myself. Instead, if I experience any side effects, I ask him to check the information for me. You might consider asking someone you trust to do the same. That way you can avoid being influenced by all the potential side effects listed, while still having access to the information if needed.
Chris

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Thank you for your input.
Are you taking an AED now?

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Profile picture for murphymarg59 @murphymarg59

Has any one taken Lamictal for seizures?
What side effects have you had if any.
My neurologist has put me on 25 mg a day for 14 days then increasing dosage over the next 6 weeks. I took Keppra and wound up min hospital. Couldn’t tolerate it. Reading side effects of Lamictal I am concerned.

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I also have a frustrated neurologist. In the last 30 years of seizures, like most, I have been on the medication merry-go-round. I had severe reactions - from being found hiding under my desk at work to drug-level toxicities. And it seemed that a change in any other medication impacted the ability of my seizure medication to treat the seizures. A few years ago, I was diagnosed with depression (I, a math-whiz, couldn't figure out how to balance my checkbook!). That brought on the addition of the antidepressants.

A new, now bestest, friend was a drug-rehab counselor. As I was turning to her for advice, I asked if she knew someone who could help. I didn't want to put this friend in the position of being "nurse" as well. She referred me to a retired psychiatrist. He was a counselor to the counselors, practiced behavioral alignment, and, better yet, he was a neurologist who knew drug effects backwards and forwards.

The result is Lamictal (lamotrigine) and Cymbalta (duloxetine). I don't presume to suggest what works for you, but I was so pleasantly surprised. The bi-weekly counseling sessions allow me to go with the flow. There is more to the story of how well this is working for me, so I will keep you and all others dealing with seizure med issues in my prayers.

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Profile picture for murphymarg59 @murphymarg59

Thank you for your input.
Are you taking an AED now?

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My pleasure @murphymarg59
I'm currently taking both Keppra and CBD (which corresponds to Epidiolex in the States).
I have temporal lobe epilepsy with a small sclerosis in my left temporal lobe.
Chris

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Profile picture for newfiemom @newfiemom

I also have a frustrated neurologist. In the last 30 years of seizures, like most, I have been on the medication merry-go-round. I had severe reactions - from being found hiding under my desk at work to drug-level toxicities. And it seemed that a change in any other medication impacted the ability of my seizure medication to treat the seizures. A few years ago, I was diagnosed with depression (I, a math-whiz, couldn't figure out how to balance my checkbook!). That brought on the addition of the antidepressants.

A new, now bestest, friend was a drug-rehab counselor. As I was turning to her for advice, I asked if she knew someone who could help. I didn't want to put this friend in the position of being "nurse" as well. She referred me to a retired psychiatrist. He was a counselor to the counselors, practiced behavioral alignment, and, better yet, he was a neurologist who knew drug effects backwards and forwards.

The result is Lamictal (lamotrigine) and Cymbalta (duloxetine). I don't presume to suggest what works for you, but I was so pleasantly surprised. The bi-weekly counseling sessions allow me to go with the flow. There is more to the story of how well this is working for me, so I will keep you and all others dealing with seizure med issues in my prayers.

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Hi @newfiemom
Welcome to the Epilepsy & Seizures group at Connect.
Finding the right medication and dosage for treating epilepsy can indeed be time-consuming. I'm so happy to hear that you've found what works for you! Continuing to persevere after 30 years of seizures certainly shows you are a true fighter.
How long have you been on Lamictal?
Would you mind sharing what type of seizures you experienced and your epilepsy diagnosis?Chris

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Profile picture for murphymarg59 @murphymarg59

Has any one taken Lamictal for seizures?
What side effects have you had if any.
My neurologist has put me on 25 mg a day for 14 days then increasing dosage over the next 6 weeks. I took Keppra and wound up min hospital. Couldn’t tolerate it. Reading side effects of Lamictal I am concerned.

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I have been on Lamictal for over 10 years, accompanied with Keppra. No problems with dizziness, dry mouth or any such thing. I do have sleep issues. Reviewing others' comments, Lamictal seems to affect their sleep. It may be affecting mine too.

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