Living with Neuropathy - Welcome to the group
Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?
Interested in more discussions like this? Go to the Neuropathy Support Group.
Welcome @1952healthyneuro, Hoping you get lots of good information from your physical therapist next week that's tailored to your specific needs. The Foundation for Peripheral Neuropathy has a lot of great information including these two that I found this morning:
-- Tailored workouts or PT sessions may help:
https://www.foundationforpn.org/lifestyles/exercise-physical-therapy/
-- Brain-Based Balance Exercises:
https://www.foundationforpn.org/brain-based-balance-exercises/
Have you had any injuries to the left ankle?
There is a discussion from earlier this year on grounding mats that if you want to read through it - https://connect.mayoclinic.org/discussion/grounding-well-mats/
Alpha Lipoid Acid from Amazon, or wherever. Don't cost much. I take 600mg twice a day. It has helped greatly with the burning. Don't have any pain
Thank you, I really appreciate what you have done for me in this email of
yours. I have written it all down in case I loose this email. Thanks again
God bless you @wenner
Wendy Wehner
0403 198 045
Yes every thing you can imagine, I have kept a diary. Drugs started early 2000.
Doctors have no idea where the neuropathy has come from I've just linked them. Am I able to say name of drugs? @wenner
I am so glad I have found this group. I was with a RLS group for many years. I know how it helps to share our stories. I am old school and appreciate the help I have been given today.
It’s definitely OK to say the name of the medications or drugs you’ve taken for treatments.
John I thought you had fixed my p/w as it worked like a beauty last night... and yes I even did some posting.
Cheers and thanks @wenner
With the diagnosis of idiopathic axonal polyperipheral neuropathy my doctor has not given me any help as to how we can manage these symptoms other than we will do annual EMG's to see how things are progressing or worsening. It seems that there should be something that could be done for the symptoms that I have, but I have been left very discouraged the comments from my doctor. When he first saw me 18 months ago, he said that I would likely be in a wheelchair within 10 years. I am looking for some kind of support out there rather than just let's wait and see how bad it gets for you.p
what tests were performed to arrive at your analysis of the condition?