Living with Neuropathy - Welcome to the group
Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?
Interested in more discussions like this? Go to the Neuropathy Support Group.
Yes, 10 years
Welcome @buckshot, I'm one of the fortunate ones as my neuropathy is only the numbness and some tingling but no pain. Do you have pain with your neuropathy? What treatments have you tried for relief?
I’d love to know if there are people out there who have had relief with home remedies for neuropathy pain
Welcome @gogo1, I don't have pain just numbness and some tingling with my neuropathy. I've tried many over the counter treatments with not much relief although I did find that a magnesium lotion on my legs at night seemed to make them feel somewhat better. While you wait for others to chime in with their experiences, here's an article that list some treatments if you have seen or tried them:
-- 7 Peripheral Neuropathy Natural Remedies: https://www.healthline.com/health/peripheral-neuropathy-natural-treatments
There are quite a few discussions found if you do a search of Connect using "neuropathy what helps" - https://connect.mayoclinic.org/search/discussions/?search=neuropathy%20what%20helps. You can also type in your own keywords and do a search to find something more specific.
Have you been diagnosed with a specific type of neuropathy?
I have stage 3 peripheral nueropathy both legs, this is the awful pain part of it 24/7. I have come to the end of the line Specialist Doctors wise, my GP is still with me trying hard to get the pain at least halved. I have been to a Neurologist, who referred me to Synapse Neurology, who sent me to a Haemotologist. I have had all their tests and it is still not known what has caused this. So I am reading all the comment, so far have not been able to get into my notifications, seems they don't like my pass word, but I'll keep trying. @wenner
I start with Restless legs in the 1970's, Moved onto Peripheral Neuropathy in 2019, but not diagnosed until this year 2025. I have tried every thing that has ever been mentioned, and have given up because even drugs are making not much difference. Apparently it won't last forever. @wenner.
@wenner, Your password should be OK if you are able to post in a discussion as you cannot do that unless you are signed into Connect. If you click on your profile icon at the top of any Connect page, it will take you to your profile page. Then you can select Settings and Preferences to change your settings for notifications. You can also click on the Bell icon at the top right of any page and it should show your notifications. If you still are having problems with notifications, you can use the contact a moderator form here - https://connect.mayoclinic.org/contact-a-community-moderator/.
You can get to the form on any Connect page by going to the left footer area at the bottom of a page and clicking Contact Mayo Clinic Connect.
Sorry to hear that it's gotten worse but I'm glad that you are not giving up. Positive attitude is a plus when dealing with the neuropathy monster. Have you tried any complementary or alternative therapies? - https://www.foundationforpn.org/therapies/
My neuropathy has recently gotten worse. My walking has become unsteady and I am having problems with balance. I’m not picking up my feet the way I should. I am starting physical therapy soon. They will be working with me on balancing exercises and dry needling. I also recently ordered Alphalipoic acid which I should be receiving very soon. I’m hoping I can tolerate that and then it will help me. I would really appreciate any thing you can share about remedies you have tried that are working. Also, does anyone have any positive results from grounding mats or grounding sheets?
I am fortunate that I don’t have a lot of pain. I do have some pain in my left ankle and heal at night when I am in bed. My podiatrist prescribed gabapentin for me, and I was not able to tolerate that at all. Made me feel out of it and also dizzy. I will be starting physical therapy next week for help with balancing exercises and also dry needling. Any suggestions?