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DiscussionHow to manage thalamic pain syndrome?
Stroke & Cerebrovascular Diseases | Last Active: Dec 7 11:49pm | Replies (8)Comment receiving replies
Replies to "wildeharpe ..... I also had a thalamic stroke about 9 months ago. I was very lucky..."
@whinnie65 .... What you are describing is close to what I have had. Every Dr visit I tell them it is getting worse and worse. It only effected my left side, started almost two years ago and spread over time. You could draw a line in half of me and it was only left side. Started with my mid section and left leg then moved up to my shoulder and down my arm. Then up my neck and then head. Now it includes all my head. Now it has increased at my midsection and I have no feeling of hunger and bath rooming (I have full control but have to do timing). Things that have made it worse are PT, massage, acupuncture, physical activities, and some medications. Continues to get worse. I am taking a light dose of Gabapentin and a muscle relaxer. I still have much pain but I would rather have pain than overmedicate and be loopy. I tried to go the the Mayo Clinic about a year ago in AZ but they said that they were to busy.
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I’ve dealt with nerve pain from a stroke for more than 10 years. Have you tried Cymbalta? It takes a while to start working, but it helps me a decent amount.