Has anyone tried Botox for headaches?

Posted by mikayla @mikaylar, Jan 26 10:08am

Was Botox successful? My doctor wants me to try it again. It did not work 8 years ago. I worry about the toxicity and my glaucoma and macular degeneration. Eye doc says it's okay, but they aren't his eyes.

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Profile picture for mcgrathcreative2 @mcgrathcreative2

Botox had been a lifesaver for me but after doing them regularly for more than 6 years my headaches have come back and mine are severe. As in I was hospitalized 7 times at a world renowned headache clinic. Anyhow after that I found an incredibly kind physiatrist who specialized in pain management. I was on methadone for my pain while we initiated the Botox. It didn’t work right away, hence the methadone, but eventually I weaned myself off of the methadone. I was so proud of myself!😊. And Botox did its magic for many years.

Unfortunately that too seems to have worn off as the headaches started to reappear. I just recently received 2 nerve blocks and several trigger point injections after still having the Botox but on different days because they can not all be done at once. Thank you United Healthcare. Anyhow I did have one trip to the ER last week for my worst migraine ever. I wanted to die. But here I am a week later and I am headache free and therefore depression free. My prayers now are that this combination plus my scary combination of preventative drugs will last. I’ve been going through this for 45 years. My list of meds tried is a full page long ( single spaced) and my current meds take up another 3/4 of a page. All I can say is God help us all!!!

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I too have tried Botox, helped at first but hasn't helped the last time done at all. I have been dealing with daily headaches and frequent migraines for 40 years. I have tried so many medications with no relief. Relpax does help sometimes. I am currently on day 5 of migraine, went for tornado shot and phenergan at urgent care, helped for a few hours but awoke with severe pounding headache again. I have been approved for SSDI thankfully as it makes it so hard to work with continuous migraines (as well as back issues). I have have been to multiple doctors, pain specialist, etc. might see about getting appt at Mayo to see if they can make any suggestions to get relief.

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Profile picture for climmer64 @climmer64

I too have tried Botox, helped at first but hasn't helped the last time done at all. I have been dealing with daily headaches and frequent migraines for 40 years. I have tried so many medications with no relief. Relpax does help sometimes. I am currently on day 5 of migraine, went for tornado shot and phenergan at urgent care, helped for a few hours but awoke with severe pounding headache again. I have been approved for SSDI thankfully as it makes it so hard to work with continuous migraines (as well as back issues). I have have been to multiple doctors, pain specialist, etc. might see about getting appt at Mayo to see if they can make any suggestions to get relief.

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Where do you live? I have a friend who tried Mayo with no luck. They sent her back to Philly to our Headache Center - Jefferson.

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I'm in Nebraska, the distance to any Mayo clinic is one reason I haven't gone, also really don't know what they could do that I haven't already tried.

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Profile picture for climmer64 @climmer64

I too have tried Botox, helped at first but hasn't helped the last time done at all. I have been dealing with daily headaches and frequent migraines for 40 years. I have tried so many medications with no relief. Relpax does help sometimes. I am currently on day 5 of migraine, went for tornado shot and phenergan at urgent care, helped for a few hours but awoke with severe pounding headache again. I have been approved for SSDI thankfully as it makes it so hard to work with continuous migraines (as well as back issues). I have have been to multiple doctors, pain specialist, etc. might see about getting appt at Mayo to see if they can make any suggestions to get relief.

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I had Botox 3 times & no help.

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Yes it worked very well for me, and I ceased the daily headache fuzz and migraines. It even gave me a super smooth fotehead but after about a year it made one of my eyebrows much higher then the other and I looked quite odd. I stopped because of insurance issues. I wasn't getting frequent/bad migraines for quite awhile so didn't resume. Now I started getting them again the last 6 months so considering it again but hoping there would be a way to avoid the weird eyebrow thing.

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Profile picture for reneemarie60 @reneemarie60

Yes it worked very well for me, and I ceased the daily headache fuzz and migraines. It even gave me a super smooth fotehead but after about a year it made one of my eyebrows much higher then the other and I looked quite odd. I stopped because of insurance issues. I wasn't getting frequent/bad migraines for quite awhile so didn't resume. Now I started getting them again the last 6 months so considering it again but hoping there would be a way to avoid the weird eyebrow thing.

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@reneemarie60 - when you had the eyebrow thing occur last time with the
botulinum toxin (Botox), did you get to ask the doctor about this effect? If so, what did he or she say about it - preventing or addressing it when it ever appears?

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Profile picture for climmer64 @climmer64

I'm in Nebraska, the distance to any Mayo clinic is one reason I haven't gone, also really don't know what they could do that I haven't already tried.

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Mayo Clinic is ranked as the best hospital in the world. The clinic in Minnesota.

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Profile picture for bernieboy @bernieboy

Mayo Clinic is ranked as the best hospital in the world. The clinic in Minnesota.

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Who's "ranking" it? People go there expecting miracles and get disappointed.

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Profile picture for reneemarie60 @reneemarie60

Yes it worked very well for me, and I ceased the daily headache fuzz and migraines. It even gave me a super smooth fotehead but after about a year it made one of my eyebrows much higher then the other and I looked quite odd. I stopped because of insurance issues. I wasn't getting frequent/bad migraines for quite awhile so didn't resume. Now I started getting them again the last 6 months so considering it again but hoping there would be a way to avoid the weird eyebrow thing.

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Avoid close to your eyes. I asked my doctor to not do anywhere near my eyes. It is toxic and your sight is essential.

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Botox is great and I’ve used it for a variety of muscular ailments where the muscles were tugging on things they shouldn’t have been and thereby causing pressure and pain. So if you have a migraine that is pressure related, it helps. Since I’ve done both talks for well over a decade and I don’t do it anymore because I don’t need to. I want to point out a couple things. Botox works by paralyzing your muscles that are causing the problem. So it gives you the opportunity to resolve and isolate the muscles, which are causing you a problem. If your problem is bio, mechanical, for example, like bad posture, you’re going to need to fix your posture when the Botox starts wearing off. Also, it weekends your muscles so if you’re doing Botox in your back shoulder areas like I did, you have to be willing to strengthen the weekend muscles with exercise or you’re going to fall back into the same problem. My neck needed a spine surgery. So the Botox was something that was useful until my doctors all figured out that the spine surgery wasn’t necessity. I had headaches because of the deterioration of my neck vertebrae and the compensation undertaken by my muscles. More and more over the years, the compensation involved more and more muscles. Be sure to find a good MFR deep myofascial release therapist as they will untangle muscles which start glowing together and moving as a unit which reaches from your shoulders to your neck into your head and causing headaches. If your problem source is my muscular, there are different muscle relaxers to try as well, which will help you diagnose your problem and where it comes from. You should consult with a good kinesiology doctor. I didn’t realize that different muscle relaxers work on different pathways in your body. Here’s to your good health!

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