Slow gi motility with severe constipation

Posted by sallyw133 @sallyw133, Feb 28, 2023

I’ve posted here before under other topics but decided to start my own thread. Diagnosed three years ago
With extremely slow gi motility, stomach down, but symptoms primarily in colon which takes 82 hrs to process. Been to numerous drs, including motility specialists, and just no relief. Also claim some pelvic floor issues so I’ve done therapy twice. My main problem is finding a regimen to maintain some kind of regularity. I’m on Bethanichol, normally for urinary retention, but helps with motility, and Amitiza daily. Then add in mineral oil, senna, dulcolax as needed. The dailies help some, but not enough, so gradually add in others, then diarrhea. Or increase dose if dailies and same. Then there’s the “is it diarrhea or overflow” issue? My gi is little help. All questions go through nurse who never gets details right or doesn’t call back for days. I’d switch, but I have no idea who else to go to as can’t go to just a regular gi. I have been on every constipation med and have even consulted a surgeon re an ileostomy, but that just sounds like a whole new group of problems. Any one there share these issues?

Interested in more discussions like this? Go to the Digestive Health Support Group.

Profile picture for tumblewind @tumblewind

After 1 week, Motegrity only worked for 3 days to different degrees. Day one -explosive diarrhea. Day 2 - normal bm! Day 3 - a few tiny stools. Now hasn't done anything for four days. Linzess was a similar experience. Back to playing mad scientist with OTC laxatives and stool softeners like miralax, CALM magnesium powder (worked one day). I know it's not a food, exercise, thyroid, hydration or pelvic floor issue. Why do our bodies reject everything we try to do to make our guts work normally!!! I wish more studies were done on those of us who have gotten to this point after having emergency childbirths that ripped into our rectal areas. My constipation problems began after that until now, 35 years later, I have it constantly.

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My GI doctor has me taking motegrity and linzess and miralax as needed. It is better but would not call it normal. He recommended taking the miralax before bed on days I haven't had a bowel movement then again in the morning. Most of the time it worked. I also noticed that the linzess is very sensitive and you need to wait the 30 mins before eating. I have been dealing with constipation issues for 15 years and have tried it all.

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Profile picture for bluedog35 @bluedog35

My GI doctor has me taking motegrity and linzess and miralax as needed. It is better but would not call it normal. He recommended taking the miralax before bed on days I haven't had a bowel movement then again in the morning. Most of the time it worked. I also noticed that the linzess is very sensitive and you need to wait the 30 mins before eating. I have been dealing with constipation issues for 15 years and have tried it all.

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Thanks for the response. I have noticed that when I increase Miralax and take Linzess, instead of being productive, my belly actually starts swelling until my pants (loose when I put them on) almost burst open. It's like growing a lower belly bowling ball in an hour or two. I am slim with a normally flat abdomen. Then I need to take the magnesium citrate bottled liquid used as a colonoscopy prep. Anyone else have this experience?

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cpeffer,

You have a very hard stool. I used to have that problem. Eat lightly - no need to add more "stuff" to a clogged pipe - until you clear out.

Liquids like Miralax do not work for me at all. I just get nauseous and don't poop. Enemas are only good if your rectum is full of stool, and again, they may not work if your stool is very hard. I had little success with such.

A regular pill form stool softener / stimulant laxative works for me. Maximum labeled dose. Have you tried that?
My gut is sensitive and a Gastro way back recommended (now it is called) Colace Plus. Get the brand not the generic. It makes a difference. Of course, take it at night as directed.

When you feel like it is time to move your bowels (for me, that is after breakfast), try drinking a glass of very hot water. As hot as you can bear. The heat is an additional stimulant to move the stool. It really speeds things up for me.

That is all I have on that topic.

Once you are cleared out, you really have to look at a few things:

Your diet - some food simply may plug you up -- your gut just doesn't digest it/them properly. Maybe once it did, but not anymore. So many foods constipate me. I basically "eat to poop." Try eating food that you can tolerate that keeps stool soft and makes you poop by either keeping stool soft or stimulating the colon -- whatever works -- prunes, prune juice, spinach, rhubarb, kiwi (yes, a study supports kiwi) and whatever else is out there that I don't use.

(I really can only deal with about 15 different foods and mostly porridge and soup. Not much raw at all. Vegetarian. Grain-free. Your solution may be in your diet. Hopefully, not as limited.)

Check out your supplements. For example, Melatonin seems to "kill" my motility and yep, there is a study/medical info on that.

Water - Nothing like it. Have it on hand to sip and drink throughout the day. (And do the hot water trick in the a.m.). You can drink other things, but you need plain water. Somehow, it gets into your colon better to keep stool soft and moving.

Consider a magnesium supplement (do your research) to keep stool soft.

Consider slippery elm inner bark powder (I put it in my hot cereal (porridge) and in hot drinks and backed items. It adds mucous to your colon, so stool slips along better. I use some (1/8 teas) with every meal and snack.

Consider gut massage (Google NHS and constipation and massage). The UK's National Health Service has good information.

Cardio exercise helps. Floor stretching with your legs -- hamstrings, knee to chest stretches -- helps. Squishing your gut with stretches can move things along.

Make sure you don't have a redundant (i.e., extra long) colon (I have one, and it makes digestion more difficult). Heather's peppermint capsules help fire my digestion and move things along and through my extra-long colon.

Make sure you don't have a rectocle (a stretched rectum/pocket where hard stool can get stuck). I have one, but if I keep my stool soft, it doesn't come into play.

Lastly, if you can sleep on your left side. It helps your stool move along.

Hopefully, one way or another, you will get the stool out. In the old days, or even now, the MDs can go in and physically remove the stool. Makes no sense to wait for a rupture. That is insane. Maybe you just need to go to the E.R. (if you haven't done that yet).

Good luck! I am sorry you are in pain right now. That is rough.

You will find an answer to prevent your constipation. Just trial and error. Keep a journal to help you remember what works and what doesn't. Once you get it down, it will all become habit and the good times will return.

REPLY
Profile picture for researchmaven @researchmaven

cpeffer,

You have a very hard stool. I used to have that problem. Eat lightly - no need to add more "stuff" to a clogged pipe - until you clear out.

Liquids like Miralax do not work for me at all. I just get nauseous and don't poop. Enemas are only good if your rectum is full of stool, and again, they may not work if your stool is very hard. I had little success with such.

A regular pill form stool softener / stimulant laxative works for me. Maximum labeled dose. Have you tried that?
My gut is sensitive and a Gastro way back recommended (now it is called) Colace Plus. Get the brand not the generic. It makes a difference. Of course, take it at night as directed.

When you feel like it is time to move your bowels (for me, that is after breakfast), try drinking a glass of very hot water. As hot as you can bear. The heat is an additional stimulant to move the stool. It really speeds things up for me.

That is all I have on that topic.

Once you are cleared out, you really have to look at a few things:

Your diet - some food simply may plug you up -- your gut just doesn't digest it/them properly. Maybe once it did, but not anymore. So many foods constipate me. I basically "eat to poop." Try eating food that you can tolerate that keeps stool soft and makes you poop by either keeping stool soft or stimulating the colon -- whatever works -- prunes, prune juice, spinach, rhubarb, kiwi (yes, a study supports kiwi) and whatever else is out there that I don't use.

(I really can only deal with about 15 different foods and mostly porridge and soup. Not much raw at all. Vegetarian. Grain-free. Your solution may be in your diet. Hopefully, not as limited.)

Check out your supplements. For example, Melatonin seems to "kill" my motility and yep, there is a study/medical info on that.

Water - Nothing like it. Have it on hand to sip and drink throughout the day. (And do the hot water trick in the a.m.). You can drink other things, but you need plain water. Somehow, it gets into your colon better to keep stool soft and moving.

Consider a magnesium supplement (do your research) to keep stool soft.

Consider slippery elm inner bark powder (I put it in my hot cereal (porridge) and in hot drinks and backed items. It adds mucous to your colon, so stool slips along better. I use some (1/8 teas) with every meal and snack.

Consider gut massage (Google NHS and constipation and massage). The UK's National Health Service has good information.

Cardio exercise helps. Floor stretching with your legs -- hamstrings, knee to chest stretches -- helps. Squishing your gut with stretches can move things along.

Make sure you don't have a redundant (i.e., extra long) colon (I have one, and it makes digestion more difficult). Heather's peppermint capsules help fire my digestion and move things along and through my extra-long colon.

Make sure you don't have a rectocle (a stretched rectum/pocket where hard stool can get stuck). I have one, but if I keep my stool soft, it doesn't come into play.

Lastly, if you can sleep on your left side. It helps your stool move along.

Hopefully, one way or another, you will get the stool out. In the old days, or even now, the MDs can go in and physically remove the stool. Makes no sense to wait for a rupture. That is insane. Maybe you just need to go to the E.R. (if you haven't done that yet).

Good luck! I am sorry you are in pain right now. That is rough.

You will find an answer to prevent your constipation. Just trial and error. Keep a journal to help you remember what works and what doesn't. Once you get it down, it will all become habit and the good times will return.

Jump to this post

thanks for the advice, I've been to the ER 6 times 4 different hospitals, my CT scan said I had ileus, but the hospital isn't doing any extra testing, I had a g. I. Dr tell me ileus was just gas??? I have to have a bowel movement soon i have to go back to work, I'm trying. miralax tomorrow. I haven't done any laxatives in 4 days. and just ate jello.

REPLY

cpeffer -- thanks for your response. I just looked up ileus -- I didn't know it was a motility issue. Wishing you the best.

REPLY
Profile picture for researchmaven @researchmaven

cpeffer,

You have a very hard stool. I used to have that problem. Eat lightly - no need to add more "stuff" to a clogged pipe - until you clear out.

Liquids like Miralax do not work for me at all. I just get nauseous and don't poop. Enemas are only good if your rectum is full of stool, and again, they may not work if your stool is very hard. I had little success with such.

A regular pill form stool softener / stimulant laxative works for me. Maximum labeled dose. Have you tried that?
My gut is sensitive and a Gastro way back recommended (now it is called) Colace Plus. Get the brand not the generic. It makes a difference. Of course, take it at night as directed.

When you feel like it is time to move your bowels (for me, that is after breakfast), try drinking a glass of very hot water. As hot as you can bear. The heat is an additional stimulant to move the stool. It really speeds things up for me.

That is all I have on that topic.

Once you are cleared out, you really have to look at a few things:

Your diet - some food simply may plug you up -- your gut just doesn't digest it/them properly. Maybe once it did, but not anymore. So many foods constipate me. I basically "eat to poop." Try eating food that you can tolerate that keeps stool soft and makes you poop by either keeping stool soft or stimulating the colon -- whatever works -- prunes, prune juice, spinach, rhubarb, kiwi (yes, a study supports kiwi) and whatever else is out there that I don't use.

(I really can only deal with about 15 different foods and mostly porridge and soup. Not much raw at all. Vegetarian. Grain-free. Your solution may be in your diet. Hopefully, not as limited.)

Check out your supplements. For example, Melatonin seems to "kill" my motility and yep, there is a study/medical info on that.

Water - Nothing like it. Have it on hand to sip and drink throughout the day. (And do the hot water trick in the a.m.). You can drink other things, but you need plain water. Somehow, it gets into your colon better to keep stool soft and moving.

Consider a magnesium supplement (do your research) to keep stool soft.

Consider slippery elm inner bark powder (I put it in my hot cereal (porridge) and in hot drinks and backed items. It adds mucous to your colon, so stool slips along better. I use some (1/8 teas) with every meal and snack.

Consider gut massage (Google NHS and constipation and massage). The UK's National Health Service has good information.

Cardio exercise helps. Floor stretching with your legs -- hamstrings, knee to chest stretches -- helps. Squishing your gut with stretches can move things along.

Make sure you don't have a redundant (i.e., extra long) colon (I have one, and it makes digestion more difficult). Heather's peppermint capsules help fire my digestion and move things along and through my extra-long colon.

Make sure you don't have a rectocle (a stretched rectum/pocket where hard stool can get stuck). I have one, but if I keep my stool soft, it doesn't come into play.

Lastly, if you can sleep on your left side. It helps your stool move along.

Hopefully, one way or another, you will get the stool out. In the old days, or even now, the MDs can go in and physically remove the stool. Makes no sense to wait for a rupture. That is insane. Maybe you just need to go to the E.R. (if you haven't done that yet).

Good luck! I am sorry you are in pain right now. That is rough.

You will find an answer to prevent your constipation. Just trial and error. Keep a journal to help you remember what works and what doesn't. Once you get it down, it will all become habit and the good times will return.

Jump to this post

Can somebody please help me I went to the ER yesterday and clappsed, I thought I ruptured, they let me lay there an. hour, until they did a CT scan, then they called a sepsis alert, witch they didn't tell me about I read it on my clinic notes, they sent a message to a Dr and he said I doubt he has sepsis, They gave me 3 enemas and discharged me, my gastro Dr said I'm supposed to keep drinking miralax, and I did last night and today, only water and blood clots come out. I'm going to try a different hospital tom

REPLY
Profile picture for cpeffer @cpeffer

Can somebody please help me I went to the ER yesterday and clappsed, I thought I ruptured, they let me lay there an. hour, until they did a CT scan, then they called a sepsis alert, witch they didn't tell me about I read it on my clinic notes, they sent a message to a Dr and he said I doubt he has sepsis, They gave me 3 enemas and discharged me, my gastro Dr said I'm supposed to keep drinking miralax, and I did last night and today, only water and blood clots come out. I'm going to try a different hospital tom

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Hi, @cpeffer - just wanted to check in and see how you are doing today?

REPLY
Profile picture for cpeffer @cpeffer

Can somebody please help me I went to the ER yesterday and clappsed, I thought I ruptured, they let me lay there an. hour, until they did a CT scan, then they called a sepsis alert, witch they didn't tell me about I read it on my clinic notes, they sent a message to a Dr and he said I doubt he has sepsis, They gave me 3 enemas and discharged me, my gastro Dr said I'm supposed to keep drinking miralax, and I did last night and today, only water and blood clots come out. I'm going to try a different hospital tom

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Did you get to another hospital? Are you better?

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Profile picture for tdassler @tdassler

Did you get to another hospital? Are you better?

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I've been back to that sand hospital, then they said they wouldn't take out the blockage, they said we will monitor you. And Im almost at another hospital and hour away. I don't know what else to do. pray they will help me

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Profile picture for Lisa Lucier, Moderator @lisalucier

Hi, @cpeffer - just wanted to check in and see how you are doing today?

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Thanks for asking, I ended up back at the same hospital because my girlfriend has to work, so it. was the only one I had assess to they did a bunch of blood work to check for sepsis, then they gave me about 8 different laxatives, I have a partial impaction so when those laxatives kicked in I was in serious pain trying to pass it. Then after about 2 hours I showed them very little bowel movement, and I asked if they were going to be able to happen, they said we usually don't do surgery for constipation, I said then what the

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