Has anyone found a treatment that helps with peripheral neuropathy?

Posted by bigjohnscho @bigjohnscho, Jul 1 10:27am

I suspect that everyone on this forum has been searching for a medication that helps their neuropathy and even though you no that all the internet claims are false we continue to waste hundreds of pounds. Desperation is a powerful force. Has any one been fortunate enough to find a genuine treatment. I just can’t believe that there are so many awful people who prey on our vulnerability and knowingly orchestrate such elaborate scams.

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Nerve Flex
Tiene merito?
Does it work for neuropathy?
Does it have merit

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Profile picture for chloebusybee3 @chloebusybee3

Has anyone experienced Drop Foot? I’m starting to have intermittent times. It’s just started along with my PN.

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I have that, but it started 35 years ago when I had a ruptured disc down in the L5 area. I have an extra lumbar vertebra. PN may be aggravating the issue for me. Walking helps.

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Profile picture for bigjohnscho @bigjohnscho

Can I ask a naive question. I look at all these so called experts all very qualified endorsing all types of treatments for peripheral neuropathy. Many of them claiming totally different root causes. What chance is thereof finding a cure when after years of trying they still don’t know the cause. It seems unbelievable

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I have the same issue. I’ve been to 4 neurologists who all do the nerve test and diagnose Peripheral Neuropathy and recommend B vitamins and gabapentin. No follow ups. 😡

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Profile picture for bini41 @bini41

I have the same issue. I’ve been to 4 neurologists who all do the nerve test and diagnose Peripheral Neuropathy and recommend B vitamins and gabapentin. No follow ups. 😡

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I take that plus lots of other stuff. I think R-ALA, alpha Lipoic acid, helps some. Also, MediNox Pro arginine/citruline, and Voltarin or equivalent foot cream. I’m trying/testing a few other things as well, but haven’t found a “cure” yet. Oh! I wear Kemford ankle compression, toeless socks most of the time. They seem to help. I’m currently trying Mama Bear Oasis cream. Ehhh… Amazon has all this stuff. Walk as much as you can and stay in thong sandals. Tie up shoes strangle your feet. My best to find some relief…

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I am relatively new to my neuropathy of my feet and ankles. I am writing this while my feet are soaking in magnesium flakes found in Amazon. Also today received my foot elevation cushion. By 4: 00 or 5:00 each nite my feet and ankles are swollen to ar least twice their normal size. I never even experienced this with pregnancies. But the swelling isn't the worst part, I feel like I am walking on footballs. There is simply no good place to land my soles. It hurts so much I am really very worried that I am headed for a wheel chair. Our home is not set up for that. The lyrica that I take for a different problem may help somewhat for my feet, but not really. I have a neurology appointment in a couple of weeks, but honestly she wasn't very helpful the last time u saw her. She prescribed p.t. that u haven't done. I don't get it...if doctors think exercise is the answer and I can't walk to the kitchen and back without my cane for balance and gingerly trying to find some place in the soles of my feet to land while walking, I am not sure what kind of exercising I can do. Does anyone feel as frustrated as I do thinking my doctors advice isn't practical. Would love to hear some of your opinions on this. Thanks

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Profile picture for scain @scain

I am relatively new to my neuropathy of my feet and ankles. I am writing this while my feet are soaking in magnesium flakes found in Amazon. Also today received my foot elevation cushion. By 4: 00 or 5:00 each nite my feet and ankles are swollen to ar least twice their normal size. I never even experienced this with pregnancies. But the swelling isn't the worst part, I feel like I am walking on footballs. There is simply no good place to land my soles. It hurts so much I am really very worried that I am headed for a wheel chair. Our home is not set up for that. The lyrica that I take for a different problem may help somewhat for my feet, but not really. I have a neurology appointment in a couple of weeks, but honestly she wasn't very helpful the last time u saw her. She prescribed p.t. that u haven't done. I don't get it...if doctors think exercise is the answer and I can't walk to the kitchen and back without my cane for balance and gingerly trying to find some place in the soles of my feet to land while walking, I am not sure what kind of exercising I can do. Does anyone feel as frustrated as I do thinking my doctors advice isn't practical. Would love to hear some of your opinions on this. Thanks

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Good news is that it’s not a death sentence, except for falls, which can lead to death so be extra mindful of your gait.
Bad news is it’s progressive and incurable.
Yeah…I hear ya.

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Why doesn't my doctor (anybody them) tell me that it's progressive? Have they also taken some pledge to never deliver he truth? What if we need to make plans for when we can no longer walk? I am shocked by what you wrote. Honestly it's going to take awhile for.mrvto accept that. I am not shooting the messenger I simply find that it's progressive shocking.

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Interestingly enough, I started using the battery operated calf compression cuffs I was givien in the hospital 4 years ago after having a lumpectomy. I have peripheral neurropathy from chemo. I decided to see if they would rid my body of the edma in my legs, mostly my ankles.
They worked well, my legs look normal.I use them for at least an hour sitting in front of the television.
I have neuropathy in my feet and 3 fingers of my left hand. I had to quit driving.
I was so surprised yesterday to realize that my fingers could feel things again and that I have more feelng in my feet.
I then researched it and found artiicles saying improving my circulation can help with neuropathy..
I'll continue to use them. If you decide to buy some, get the ind you can walk around in. I'm 84.

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I am trying LDN, low dosage naltrexone. It is compounded. I asked my neurologist if she would prescribe and she was open to me trying it for my numbness and leg vibrations, I also have Raynauds which it is reported to help. You start on low dosage for 14 days and then go up. Just started so nothing to report.

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Profile picture for bigjohnscho @bigjohnscho

Can I ask a naive question. I look at all these so called experts all very qualified endorsing all types of treatments for peripheral neuropathy. Many of them claiming totally different root causes. What chance is thereof finding a cure when after years of trying they still don’t know the cause. It seems unbelievable

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This post interests me as I spent several hours yesterday going thru the extensive list of neurologists that is posted here on the link. I narrowed it down to just 2 who may have expertise in PN. I think that 99 per cent of them are located in Boston. Going to a doctor in Boston means parking up to several blocks away and walking to their office. If we as a group have difficulty walking in our homes, how are we expected to accomplish this. Some may also have offices in suburbs where a close up parking lot is available. That would mean the difference in seeing them. But back to the issue of most of us already have seen our local neurologists and think that a neurologist who specializes in PN may be more helpful is not what I am reading here is the answer. Did anyone get any more clarity on PN seeing a specialized doctor? I am always hopeful that a doctor out there has a better understanding than your basic neurologist who just wants to prescribe a pain pill and call it a day. Thanks

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