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Transplants | Last Active: Oct 24 12:37pm | Replies (445)
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Yes depending on the day or week...I still have itch, nausea, and the never ending fatigue. My life is much more limited. I was looking forward to the trip to Mayo but it took me 3 days to recover. Most of my days I struggle to get to PT for my shoulder and foot....The fall this summer changed everything even though unrelated to the liver. LOL...somehow the liver rules! Im making great progress with my PT and am looking forward to getting back to 99.9%.
Replies to "Yes depending on the day or week...I still have itch, nausea, and the never ending fatigue...."
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@jeanne5009, The liver sure does rule. And I realize from my experience how tired I used to get with liver disease. You are doing the very best thing for yourself by accepting it (not easy to do) and by allowing yourself the recovery time.
I bet that you are encouraged by your progress with the PT. 99.9% is a fantastic goal and an amazing accomplishment for you since you are having fatigue, So, how often do you see your local docs, and how often do you go to Mayo? I can see that you are being closely monitored, and that is a good thing.
I have some questions for you, and please only answer if you are comfortable to do so. Are you on the transplant list yet? Have the doctors given you any thoughts on whether you will remain at a steady Stage 4 level, or do they think that you will eventually need a transplant?